Improving children's health through research
Collaboration
Pediatric health systems across the country work together to do research in PEDSnet
THE PROBLEMS WE FACE
Most research is done on adults, and children are excluded from studies
Research takes too long and is too expensive
There’s not enough research to decide which treatment is best for a child
AND HOW WE WORK TO SOLVE THEM
Big Health Data
We create large health care data sets using electronic health records and other clinical data for children
Impact
We conduct research to provide useful information to inform patients' and clinicians' decisions
PEDSnet Research produces useful information to improve children's health and healthcare.
Learn more about PEDSnet ResearchOUR DATA
The Data Network includes patients with every type of pediatric disorder, and every pediatric specialty that provides services to children is represented.
Learn more about the Data NetworkNEWS & EVENTS
New Clinicaltrials.gov Requirements
New HHS and NIH regulations are meant to increase transparency and timely publication of clinical trial information in Clinicaltrials.gov
Weekly NIH HCS Collaboratory and PCORnet Grand Rounds, Fridays at 1:00-2:00p ET
6/30/17: "The Yale Open Data Access (YODA) Project: Lessons Learned in Data Sharing"
Drexel iFellows Doctoral Award Recipient to Collaborate with PEDSnet
CHOP & Seattle Children's Hospital will contribute data
NEJM Editorial on the High Costs of Liquid Drug Preparations for Children
"Pediatric Drug Formulations — Unintended Consequences of Legislation"
E-Consent Guidance Available
FDA & OHRP publishes "Use of Electronic Informed Consent--Questions and Answers"
New JAMA Viewpoint Article: "Creating Local Learning Health Systems - Think Globally, Act Locally"
Dr. Smoyer of the PEDSnet Steering Board and colleagues on creating local LHS
