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PEDSnet leading Long COVID study in children

THE PROBLEMS FACING CHILDREN AND RESEARCH

Most research is done on adults, and children are excluded from studies

Research takes too long and is too expensive

There’s not enough research to decide which treatment is best for a child

AND HOW WE WORK TO SOLVE THEM

Collaboration

Pediatric health systems across the country work together to do research in PEDSnet

Big Health Data

We create large health care data sets using electronic health records and other clinical data for children

Impact

We conduct research to provide useful information to inform patients' and clinicians' decisions

Recently Funded Research

Comparative Effectiveness of Surgery for Pediatric Kidney Stones Using a Learning Health System (PKIDS)

Gregory E. Tasian, MD, MSc, MSCE, CHOP, PCORI

Preserving Kidney Function in Children with Chronic Kidney Disease

Christopher Forrest, MD, PhD, Children's Hospital of Philadelphia, PCORI

Characterizing Disease Trajectory for Improving Treatment in Pediatric Crohn's Disease

Jing Huang, PhD, CHOP, NIH

Key Facts

PEDSnet has received 119 grants and contracts from PCORI, NIH, FDA, CDC, MDIC/NESTcc, AHRQ, Foundations, and Industry.

Our database of electronic health records includes clinical information for children seen since 2009, and is updated on a quarterly basis.

Each publication increases the dissemination of credible and innovative research generated within the network, and advances the PEDSnet mission to improve the quality of care by applying relevant new knowledge generated through research.

PEDSnet includes a team of pediatric data scientists, clinical informaticians, and applied clinical research methodologists who collaborate with investigators and sponsors to translate their research questions into new pediatric evidence.

Learn more about PEDSnet Research

PEDSnet is a Clinical Research Network in PCORnet®, the National Patient-Centered Clinical Research Network. PCORnet® has been developed with funding from the Patient-Centered Outcomes Research Institute® (PCORI®). PEDSnet’s participation in PCORnet® is funded through PCORI® Award RI-CHOP-01-PS1.

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