PEDSnet was launched with funding from the Patient-Centered Outcomes Research Institute (PCORI).
In 2014, the Patient-Centered Outcomes Research Institute (PCORI) launched an ambitious new initiative known as PCORnet, the National Patient-Centered Clinical Research Network. The vision was to create a network-of-networks composed of interconnected research infrastructures that would enable large-scale studies to be conducted faster, better (more responsive to patient and clinician priorities), and cheaper. We are a tightly integrated partnership of 9 large Clinical Research Networks, 2 Health Plan Research Networks, a Coordinating Center, and a Central Office. PCORnet represents a diverse set of patients and institutions, ranging from cutting-edge academic medical centers to local community health clinics caring for our nation’s most vulnerable patients.
Today . . .
PEDSnet is a large, national community of hospitals and healthcare organizations, researchers and clinicians, and patients and families. This community works together to identify the most important research questions that can reduce children's suffering and support their healthy development. When we do research, our goal is to conduct it as inexpensively and quickly as possible, while engaging all of our stakeholders in the research process along the way.
PEDSnet is a multi-specialty network that conducts observational research and clinical trials across multiple children's hospital health systems. We are governed by parents and senior leaders in these health systems. PEDSnet has produced reusable and expandable governance, logistical, informatics, regulatory, scientific, and training resources, organized as a Pediatric Research Commons. Across its 8 founding institutions, PEDSnet has created a longitudinal data resource that dates back to 2009, cutting across all pediatric diseases, and including all pediatric specialties.