PEDSnet was launched with funding from the Patient-Centered Outcomes Research Institute (PCORI).
In 2014, the Patient-Centered Outcomes Research Institute (PCORI) launched an ambitious new initiative known as PCORnet, the National Patient-Centered Clinical Research Network. The vision was to create a network-of-networks composed of interconnected research infrastructures that would enable large-scale studies to be conducted faster, better (more responsive to patient and clinician priorities), and cheaper. PCORnet currently includes 13 Clinical Data Research Networks (CDRNs), including PEDSnet, and 20 Patient Powered Research Networks (PPRNs), and a Coordinating Center charged with providing technical and logistical expertise and assistance. CDRNs represent partnerships among health clinics, hospitals, and other health systems with the ability to collect and use information from multiple data sources such as electronic health records (EHRs). PPRNs are formed by patients/participants to promote information exchange on a particular health issue and find answers to improve their health outcomes.
Today . . .
PEDSnet is a large, national community of hospitals and healthcare organizations, researchers and clinicians, and patients and families. This community works together to identify the most important research questions that can reduce children's suffering and support their healthy development. When we do research, our goal is to conduct it as inexpensively and quickly as possible, while engaging all of our stakeholders in the research process along the way.
PEDSnet is a multi-specialty network that conducts observational research and clinical trials across multiple children's hospital health systems. We are governed by parents and senior leaders in these health systems. PEDSnet has produced reusable and expandable governance, logistical, informatics, regulatory, scientific, and training resources, organized as a Pediatric Research Commons. Across its 8 founding institutions, PEDSnet has created a longitudinal data resource that dates back to 2009, cutting across all pediatric diseases, and including all pediatric specialties.
- Forrest CB, Margolis P, Seid M, Colletti RB. PEDSnet: How A Prototype Pediatric Learning Health System Is Being Expanded Into A National Network. Health Aff (Millwood). 2014;33(7):1171–1177. doi:10.1377/hlthaff.2014.0127.
- Forrest CB, Margolis PA, Bailey LC, et al. PEDSnet: a National Pediatric Learning Health System. J Am Med Inform Assoc. May 2014. doi:10.1136/amiajnl-2014-002743.