Jennifer Arneson joined the PEDSnet Engagement Committee in hopes to help researchers from a parent perspective. Jennifer's son, Rodney,  was born with Jacobsen Syndrome and Jennifer spent 15 months taking care of him and all his health needs. After Rodney passed away, Jennifer wanted to use the knowledge Rodney provided her with as his care taker to help assist others with that knowledge. Jennifer hopes that her knowledge as a care giver can help other families and researchers in the future.