Data Domains in PEDSnet Database

Domain Examples Utility to research
Demographics Age, date of birth, gestational age, sex, ethnicity, race, zip code, PEDSnet health system site, primary care provider(PCP), death and cause of death(if available), tobacco use Exposures, health determinants, confounders, mediators, effect modifiers, outcomes (death);Zip codes and health system site can be geo coded and linked to area-level environmental factors influencing health and health outcomes;
Outpatient encounters (~75 visitspecialtytypesavailable) Primary care visits, specialty care clinics (e.g.,cardiology, endocrinology, nephrology, oncology, etc), physical therapy, occupational therapy, speech language pathology, medical genetics/genomics, etc Provides longitudinal follow-up and duration of clinical course; health care utilization measures; Distinguishes between specialty care (and type of specialty care)and primary care visits;
Inpatient admissions Length of stay, discharge status; diagnoses, procedures, medications, and lab results associated with inpatient stay Measures health care utilization for patients and conditions; Provides longitudinal data to evaluate disease course and severity of illness;
Emergency departmenten counters Diagnoses, procedures, medications, and lab results associated with ED visit; ED visits resulting in inpatient admission Provides markers for disease progression and clinical outcomes; Health care utilization measures; Markers for chronic disease control and severity;
Anthropometrics Height (cm) and weight (kg),BMI, head circumference Outcomes, health determinants, confounders, mediators, effect modifiers; Markers for health status;
Vital signs Temperature, blood pressure Outcomes, health determinants, confounders, mediators, effect modifiers; Markers for health status;
Providers Specialty, health care facility Differences and similarities in clinical course of care between patients seen by primary care and specialty care physicians;
Diagnoses Final diagnoses are recorded at each encounter and are mapped to a standardized codes(typically SNOMED-CT) Provides ability to define and construct cohorts and out comes of interest; Sufficient power to study rare diseases of interest; Provides comorbidity information;
Procedures Procedures are recorded at each encounter and are mapped to standardized SNOMED-CT, ICD-9Procedure, ICD-10 Procedure, CPT-4, andHCPCS codes Measures disease severity; Improves case-finding accuracy and provides more detailed clinical data;
Prescribed medications Medications ordered are recorded at each encounter and mapped to a standardized RxNorm code Provides information about disease control and severity; Markers of clinical course and health behaviors;
Dispensed medications Medications dispensed, when available, are recorded and mapped to a standardized RxNorm code Medications that patients likely received; More accurate measure of medication record and disease control
Laboratory test results Key components of lipid panel, complete metabolic panel, complete blood counts, microbiologic cultures, liver function tests, urinalysis, viral panels, etc Identifies more precise clinical outcomes and health determinants; Evaluate and define disease progression;Provides more accurate measure and definition of disease as well as disease severity and control;
Visit payer Plan class (private/commercial, medicaid/sCHIP,Medicare, other public, self-pay, other/unknown),plan type (HMO, PPO, POS, fee for service, other/unknown)for every unique visit.Enrollment information unavailable. Confounders, mediators, effect modifiers;Ability to study effect of payer visit with health outcomes and other outcomes of interest


Domain Descriptions

outpatient encounters
inpatient encounters
diagnosis domain
procedures domain
medication domain
lab domain
visit payer

Last Updated: 4/12/21