PEDSnet Database Version 2024.06

Data Summary

N=14,266,572

Summary Variables N
Total Outpatient/ED Visits 201,581,911
Total Hospitalizations 5,405,963


Table 1. Patient Characteristics

Characteristic Active (visit in last 18 months) Overall
N=5,502,863 N=14,266,572
Age at First Visit (in years)
0 2,572,896 (46.8%) 4,705,951 (33.0%)
1 - 4 1,258,963 (22.9%) 3,195,992 (22.4%)
5 - 11 978,192 (17.8%) 3,119,302 (21.9%)
12 - 17 419,117 (7.6%) 1,944,787 (13.6%)
18 - 24 55,717 (1.0%) 313,021 (2.2%)
25+ 217,978 (4.0%) 959,816 (6.7%)
Mean 4.9 7.5
Median [Q1, Q3] 1.3 [0.0, 6.6] 3.7 [0.4, 11.1]
Age at Last Visit (in years)
0 324,258 (5.9%) 903,843 (6.3%)
1 - 4 1,142,258 (20.8%) 2,690,611 (18.9%)
5 - 11 1,787,033 (32.5%) 3,969,224 (27.8%)
12 - 17 1,446,719 (26.3%) 3,785,470 (26.5%)
18 - 24 485,595 (8.8%) 1,669,617 (11.7%)
25+ 317,000 (5.8%) 1,220,104 (8.6%)
Mean 11.2 12.5
Median [Q1, Q3] 9.9 [4.6, 15.6] 11.2 [4.9, 17.1]
Duration of Follow-up (in years)
Mean 6.4 5.1
Median [Q1, Q3] 5.1 [1.6, 10.1] 3.2 [0.4, 8.4]
Duration of Follow-up for All Chronic Patients (in years)*
Mean 7.8 7.2
Median [Q1, Q3] 6.8 [3.1, 11.8] 6.0 [2.5, 11.1]
Year of Cohort Entry
Mean 2017 2015
Median [Q1, Q3] 2018 [2013, 2022] 2015 [2011, 2019]
Institution
CCHMC 518,151 (9.4%) 1,090,047 (7.6%)
CHOP 690,697 (12.6%) 1,664,458 (11.7%)
Colorado 434,461 (7.9%) 1,395,086 (9.8%)
Lurie 302,830 (5.5%) 984,225 (6.9%)
National 650,142 (11.8%) 1,680,087 (11.8%)
Nationwide 485,087 (8.8%) 1,138,145 (8.0%)
Nemours 692,278 (12.6%) 1,852,974 (13.0%)
Seattle 245,093 (4.5%) 859,788 (6.0%)
Stanford 354,344 (6.4%) 876,281 (6.1%)
Texas 1,129,780 (20.5%) 2,725,481 (19.1%)
Sex
Female 2,779,381 (50.5%) 7,202,600 (50.5%)
Male 2,722,463 (49.5%) 7,049,052 (49.4%)
Race
American Indian or Alaska Native 17,919 (0.3%) 47,866 (0.3%)
Asian/Native Hawaiian/Other Pacific Islander 329,449 (6.0%) 744,846 (5.2%)
Black/African American 939,968 (17.1%) 2,182,847 (15.3%)
White 2,901,233 (52.7%) 7,598,487 (53.3%)
Multiple race 220,361 (4.0%) 460,030 (3.2%)
Other** 777,236 (14.1%) 2,012,918 (14.1%)
Unknown 316,697 (5.8%) 1,219,578 (8.5%)
Ethnicity
Yes 1,207,794 (21.9%) 2,814,420 (19.7%)
No 3,806,589 (69.2%) 9,536,181 (66.8%)
Other/Unknown 488,480 (8.9%) 1,915,971 (13.4%)
Insurance Payer
Medicare/Medicaid 1,635,194 (29.7%) 3,976,139 (27.9%)
Private 2,639,882 (48.0%) 6,914,510 (48.5%)
Other/Unknown 1,227,787 (22.3%) 3,375,923 (23.7%)
Medical Complexity (PMCA)
Complex Chronic (malignant, progressive, or 2+ body systems) 491,360 (8.9%) 722,557 (5.1%)
Noncomplex Chronic 784,980 (14.3%) 1,234,295 (8.7%)
No Chronic Disorders 4,226,523 (76.8%) 12,282,017 (86.1%)

*Chronic refers to patients who were flagged as “Complex Chronic” or “Noncomplex Chronic” using PMCA.

**Other refers to the following responses from the EHR: “Other” or “Refuse to answer”.


Stratified by Site

CCHMC CHOP Colorado Lurie National Nationwide Nemours Seattle Stanford Texas Overall
N=1,090,047 N=1,664,458 N=1,395,086 N=984,225 N=1,680,087 N=1,138,145 N=1,852,974 N=859,788 N=876,281 N=2,725,481 N=14,266,572
Age at First Visit (in years)
0 347,885 (31.9%) 645,637 (38.8%) 421,008 (30.2%) 339,006 (34.4%) 469,572 (27.9%) 424,235 (37.3%) 647,597 (34.9%) 213,095 (24.8%) 208,933 (23.8%) 988,983 (36.3%) 4,705,951 (33.0%)
1 - 4 212,982 (19.5%) 387,291 (23.3%) 365,054 (26.2%) 236,930 (24.1%) 323,225 (19.2%) 267,661 (23.5%) 452,672 (24.4%) 208,187 (24.2%) 127,085 (14.5%) 614,905 (22.6%) 3,195,992 (22.4%)
5 - 11 242,480 (22.2%) 355,582 (21.4%) 303,289 (21.7%) 225,386 (22.9%) 385,122 (22.9%) 242,583 (21.3%) 457,936 (24.7%) 214,439 (24.9%) 161,575 (18.4%) 530,910 (19.5%) 3,119,302 (21.9%)
12 - 17 173,965 (16.0%) 203,617 (12.2%) 194,005 (13.9%) 146,738 (14.9%) 241,761 (14.4%) 147,782 (13.0%) 267,085 (14.4%) 170,255 (19.8%) 127,300 (14.5%) 272,279 (10.0%) 1,944,787 (13.6%)
18 - 24 29,833 (2.7%) 15,296 (0.9%) 29,811 (2.1%) 7,786 (0.8%) 88,512 (5.3%) 17,859 (1.6%) 6,682 (0.4%) 15,239 (1.8%) 57,384 (6.5%) 44,619 (1.6%) 313,021 (2.2%)
25+ 82,902 (7.6%) 57,035 (3.4%) 55,588 (4.0%) 28,379 (2.9%) 171,869 (10.2%) 38,025 (3.3%) 21,002 (1.1%) 37,283 (4.3%) 194,004 (22.1%) 273,729 (10.0%) 959,816 (6.7%)
Mean 8.6 5.7 6.8 6.1 9.0 6.0 5.3 7.7 13.6 8.0 7.5
Median [Q1, Q3] 4.6 [0.3, 12.4] 2.4 [0.1, 8.8] 3.4 [0.6, 10.3] 3.1 [0.4, 9.8] 5.7 [0.7, 13.8] 2.5 [0.2, 9.4] 3.0 [0.2, 9.1] 5.2 [1.0, 12.3] 9.3 [1.2, 21.9] 3.0 [0.2, 10.5] 3.7 [0.4, 11.1]
Age at Last Visit (in years)
0 49,548 (4.5%) 97,141 (5.8%) 104,761 (7.5%) 92,080 (9.4%) 98,347 (5.9%) 51,949 (4.6%) 110,734 (6.0%) 77,899 (9.1%) 58,744 (6.7%) 162,640 (6.0%) 903,843 (6.3%)
1 - 4 173,226 (15.9%) 316,368 (19.0%) 291,472 (20.9%) 227,988 (23.2%) 301,516 (17.9%) 210,432 (18.5%) 364,500 (19.7%) 186,827 (21.7%) 123,046 (14.0%) 495,236 (18.2%) 2,690,611 (18.9%)
5 - 11 275,492 (25.3%) 461,981 (27.8%) 393,500 (28.2%) 299,690 (30.4%) 451,023 (26.8%) 322,891 (28.4%) 588,243 (31.7%) 247,506 (28.8%) 178,315 (20.3%) 750,583 (27.5%) 3,969,224 (27.8%)
12 - 17 269,190 (24.7%) 470,686 (28.3%) 388,492 (27.8%) 262,479 (26.7%) 396,676 (23.6%) 340,738 (29.9%) 588,503 (31.8%) 245,044 (28.5%) 179,693 (20.5%) 643,969 (23.6%) 3,785,470 (26.5%)
18 - 24 179,095 (16.4%) 238,645 (14.3%) 122,144 (8.8%) 68,658 (7.0%) 238,127 (14.2%) 153,322 (13.5%) 168,593 (9.1%) 61,285 (7.1%) 113,504 (13.0%) 326,244 (12.0%) 1,669,617 (11.7%)
25+ 143,496 (13.2%) 79,637 (4.8%) 68,386 (4.9%) 33,330 (3.4%) 194,372 (11.6%) 58,813 (5.2%) 32,401 (1.7%) 39,937 (4.6%) 222,979 (25.4%) 346,753 (12.7%) 1,220,104 (8.6%)
Mean 14.8 11.8 11.2 9.9 13.0 12.2 10.5 10.6 17.6 13.9 12.5
Median [Q1, Q3] 13.2 [6.2, 19.0] 11.3 [5.0, 17.0] 10.0 [4.1, 15.9] 8.8 [3.5, 14.9] 11.8 [5.2, 18.1] 11.6 [5.4, 17.1] 10.3 [4.8, 15.6] 9.5 [3.8, 15.5] 14.9 [6.3, 25.4] 11.5 [5.2, 17.9] 11.2 [4.9, 17.1]
Duration of Follow-up (in years)
Mean 6.2 6.1 4.3 3.9 4.0 6.2 5.2 2.8 4.0 5.9 5.1
Median [Q1, Q3] 5.4 [1.1, 11.0] 4.1 [0.6, 10.3] 2.3 [0.1, 7.2] 1.8 [0.1, 6.3] 2.8 [0.2, 6.7] 5.2 [1.4, 10.2] 3.2 [0.4, 8.2] 0.9 [0.0, 4.6] 1.9 [0.2, 6.3] 4.1 [0.7, 9.6] 3.2 [0.4, 8.4]
Duration of Follow-up for All Chronic Patients (in years)*
Mean 7.5 8.2 6.7 6.5 6.6 8.6 7.2 5.5 5.8 7.7 7.2
Median [Q1, Q3] 7.1 [3.0, 12.2] 6.9 [2.8, 13.0] 5.2 [2.1, 10.5] 4.9 [2.0, 10.0] 6.1 [2.9, 10.0] 8.2 [3.7, 13.2] 5.6 [2.6, 10.7] 4.6 [1.7, 8.8] 4.0 [1.6, 8.6] 6.5 [2.7, 11.8] 6.0 [2.5, 11.1]
Sex
Female 555,030 (50.9%) 821,161 (49.3%) 690,411 (49.5%) 469,133 (47.7%) 846,931 (50.4%) 563,310 (49.5%) 881,497 (47.6%) 421,135 (49.0%) 509,764 (58.2%) 1,444,228 (53.0%) 7,202,600 (50.5%)
Male 534,827 (49.1%) 842,889 (50.6%) 694,546 (49.8%) 514,910 (52.3%) 832,623 (49.6%) 574,754 (50.5%) 971,365 (52.4%) 438,531 (51.0%) 366,308 (41.8%) 1,278,299 (46.9%) 7,049,052 (49.4%)
Race
American Indian or Alaska Native 1,420 (0.1%) 1,705 (0.1%) 7,337 (0.5%) 1,419 (0.1%) 8,378 (0.5%) 2,199 (0.2%) 3,160 (0.2%) 11,571 (1.3%) 1,611 (0.2%) 9,066 (0.3%) 47,866 (0.3%)
Asian/Native Hawaiian/Other Pacific Islander 27,129 (2.5%) 79,425 (4.8%) 36,769 (2.6%) 50,857 (5.2%) 97,815 (5.8%) 43,153 (3.8%) 44,761 (2.4%) 88,019 (10.2%) 137,662 (15.7%) 139,256 (5.1%) 744,846 (5.2%)
Black/African American 157,582 (14.5%) 343,886 (20.7%) 77,992 (5.6%) 115,781 (11.8%) 472,153 (28.1%) 213,800 (18.8%) 321,307 (17.3%) 52,159 (6.1%) 16,784 (1.9%) 411,403 (15.1%) 2,182,847 (15.3%)
White 773,015 (70.9%) 900,005 (54.1%) 853,397 (61.2%) 458,609 (46.6%) 558,988 (33.3%) 726,121 (63.8%) 1,005,890 (54.3%) 439,660 (51.1%) 243,895 (27.8%) 1,638,907 (60.1%) 7,598,487 (53.3%)
Multiple race 38,493 (3.5%) 40,018 (2.4%) 94,907 (6.8%) 27,562 (2.8%) 1,495 (0.1%) 63,895 (5.6%) 48,506 (2.6%) 45,386 (5.3%) 24,081 (2.7%) 75,687 (2.8%) 460,030 (3.2%)
Other** 89,591 (8.2%) 0 (0%) 189,330 (13.6%) 260,770 (26.5%) 318,968 (19.0%) 14,880 (1.3%) 333,913 (18.0%) 193,795 (22.5%) 216,937 (24.8%) 394,734 (14.5%) 2,012,918 (14.1%)
Unknown 2,817 (0.3%) 299,419 (18.0%) 135,354 (9.7%) 69,227 (7.0%) 222,290 (13.2%) 74,097 (6.5%) 95,437 (5.2%) 29,198 (3.4%) 235,311 (26.9%) 56,428 (2.1%) 1,219,578 (8.5%)
Ethnicity
Yes 56,269 (5.2%) 149,597 (9.0%) 362,090 (26.0%) 299,448 (30.4%) 272,508 (16.2%) 59,722 (5.2%) 345,518 (18.6%) 145,438 (16.9%) 172,684 (19.7%) 951,146 (34.9%) 2,814,420 (19.7%)
No 990,000 (90.8%) 1,295,942 (77.9%) 865,781 (62.1%) 555,207 (56.4%) 999,645 (59.5%) 1,028,888 (90.4%) 1,391,536 (75.1%) 619,623 (72.1%) 388,940 (44.4%) 1,400,619 (51.4%) 9,536,181 (66.8%)
Other/Unknown 43,778 (4.0%) 218,919 (13.2%) 167,215 (12.0%) 129,570 (13.2%) 407,934 (24.3%) 49,535 (4.4%) 115,920 (6.3%) 94,727 (11.0%) 314,657 (35.9%) 373,716 (13.7%) 1,915,971 (13.4%)
Insurance Payer
Medicare/Medicaid 46,374 (4.3%) 501,701 (30.1%) 327,364 (23.5%) 400,971 (40.7%) 89,664 (5.3%) 501,940 (44.1%) 814,433 (44.0%) 351,543 (40.9%) 223,039 (25.5%) 719,110 (26.4%) 3,976,139 (27.9%)
Private 13,270 (1.2%) 1,124,772 (67.6%) 463,773 (33.2%) 411,962 (41.9%) 637,221 (37.9%) 546,474 (48.0%) 1,001,768 (54.1%) 427,209 (49.7%) 511,416 (58.4%) 1,776,645 (65.2%) 6,914,510 (48.5%)
Other/Unknown 1,030,403 (94.5%) 37,985 (2.3%) 603,949 (43.3%) 171,292 (17.4%) 953,202 (56.7%) 89,731 (7.9%) 36,773 (2.0%) 81,036 (9.4%) 141,826 (16.2%) 229,726 (8.4%) 3,375,923 (23.7%)
Medical Complexity (PMCA)
Complex Chronic (malignant, progressive, or 2+ body systems) 76,812 (7.0%) 100,768 (6.1%) 76,340 (5.5%) 42,863 (4.4%) 67,113 (4.0%) 49,249 (4.3%) 87,514 (4.7%) 51,614 (6.0%) 50,663 (5.8%) 119,621 (4.4%) 722,557 (5.1%)
Noncomplex Chronic 102,498 (9.4%) 154,924 (9.3%) 124,093 (8.9%) 63,727 (6.5%) 155,630 (9.3%) 87,387 (7.7%) 177,145 (9.6%) 67,815 (7.9%) 72,572 (8.3%) 228,504 (8.4%) 1,234,295 (8.7%)
No Chronic Disorders 910,737 (83.6%) 1,408,766 (84.6%) 1,168,322 (83.7%) 877,635 (89.2%) 1,457,318 (86.7%) 1,001,509 (88.0%) 1,588,315 (85.7%) 739,069 (86.0%) 753,046 (85.9%) 2,377,300 (87.2%) 12,282,017 (86.1%)

*Chronic refers to patients who were flagged as “Complex Chronic” or “Noncomplex Chronic” using PMCA.

**Other refers to the following responses from the EHR: “Other” or “Refuse to answer”.


Table 2. Selected Health Conditions

Health Conditions N Prevalence per 10,000 patients in database
Appendicitis 98,105 69
Juvenile Idiopathic Arthritis 25,630 18
Asthma 1,279,572 897
Bronchopulmonary dysplasia 32,702 23
Brain tumor 33,117 23
Chronic Granulomatous Disease 450 0
Cystic Fibrosis 13,200 9
Duchenne muscular dystrophy 11,515 8
Inflammatory bowel disease (Ulcerative Colitis + Crohn’s Disease) 42,669 30
Immune Thrombocytopenic Purpura 2,456 2
Leukemia + Lymphoma 44,639 31
Lyme Disease 24,104 17
Sickle Cell Anemia 20,844 15
Seizure Disorder 425,370 298
Type 1 Diabetes 80,273 56