PEDSnet Database Version 2025.03

Data Summary

N=15,015,105

Summary Variables N
Total Outpatient/ED Visits 219,670,249
Total Hospitalizations 5,863,644


Table 1. Patient Characteristics

Characteristic Active (visit in last 18 months) Overall
N=5,703,384 N=15,015,105
Age at First Visit (in years)
0 2,707,791 (47.5%) 4,981,118 (33.2%)
1 - 4 1,285,479 (22.5%) 3,339,053 (22.2%)
5 - 11 983,279 (17.2%) 3,263,061 (21.7%)
12 - 17 424,337 (7.4%) 2,043,890 (13.6%)
18 - 24 60,931 (1.1%) 331,954 (2.2%)
25+ 241,567 (4.2%) 1,029,204 (6.9%)
Mean 4.9 7.5
Median [Q1, Q3] 1.2 [0.0, 6.5] 3.7 [0.4, 11.1]
Age at Last Visit (in years)
0 338,564 (5.9%) 941,609 (6.3%)
1 - 4 1,160,153 (20.3%) 2,772,694 (18.5%)
5 - 11 1,848,686 (32.4%) 4,137,847 (27.6%)
12 - 17 1,511,216 (26.5%) 4,018,975 (26.8%)
18 - 24 494,607 (8.7%) 1,795,509 (12.0%)
25+ 350,158 (6.1%) 1,321,646 (8.8%)
Mean 11.4 12.7
Median [Q1, Q3] 10.0 [4.7, 15.7] 11.4 [5.0, 17.3]
Duration of Follow-up (in years)
Mean 6.5 5.2
Median [Q1, Q3] 5.2 [1.6, 10.3] 3.3 [0.4, 8.6]
Duration of Follow-up for All Chronic Patients (in years)*
Mean 7.9 7.3
Median [Q1, Q3] 6.9 [3.2, 11.8] 6.1 [2.6, 11.2]
Year of Cohort Entry
Mean 2018 2015
Median [Q1, Q3] 2019 [2014, 2023] 2016 [2011, 2020]
Institution
CCHMC 514,809 (9.0%) 1,132,479 (7.5%)
CHOP 685,070 (12.0%) 1,732,454 (11.5%)
Colorado 446,479 (7.8%) 1,458,761 (9.7%)
Lurie 308,593 (5.4%) 1,032,162 (6.9%)
National 712,624 (12.5%) 1,800,977 (12.0%)
Nationwide 525,385 (9.2%) 1,218,843 (8.1%)
Nemours 712,411 (12.5%) 1,948,410 (13.0%)
Seattle 261,218 (4.6%) 910,203 (6.1%)
Stanford 387,131 (6.8%) 930,790 (6.2%)
Texas 1,149,664 (20.2%) 2,850,026 (19.0%)
Sex
Female 2,881,893 (50.5%) 7,587,456 (50.5%)
Male 2,820,553 (49.5%) 7,412,605 (49.4%)
Race
American Indian or Alaska Native 19,073 (0.3%) 51,255 (0.3%)
Asian/Native Hawaiian/Other Pacific Islander 347,428 (6.1%) 793,883 (5.3%)
Black/African American 968,504 (17.0%) 2,282,829 (15.2%)
White 2,972,707 (52.1%) 7,962,161 (53.0%)
Multiple race 239,445 (4.2%) 498,405 (3.3%)
Other** 953,844 (16.7%) 2,462,985 (16.4%)
Unknown 202,383 (3.5%) 963,587 (6.4%)
Ethnicity
Yes 1,286,479 (22.6%) 3,013,840 (20.1%)
No 3,910,004 (68.6%) 10,000,235 (66.6%)
Other/Unknown 506,901 (8.9%) 2,001,030 (13.3%)
Insurance Payer
Medicare/Medicaid 1,658,870 (29.1%) 4,149,292 (27.6%)
Private 2,754,002 (48.3%) 7,274,281 (48.4%)
Other/Unknown 1,290,512 (22.6%) 3,591,532 (23.9%)
Medical Complexity (PMCA)
Complex Chronic (malignant, progressive, or 2+ body systems) 512,986 (9.0%) 765,196 (5.1%)
Noncomplex Chronic 827,192 (14.5%) 1,324,462 (8.8%)
No Chronic Disorders 4,363,206 (76.5%) 12,898,622 (85.9%)

*Chronic refers to patients who were flagged as “Complex Chronic” or “Noncomplex Chronic” using PMCA.

**Other refers to the following responses from the EHR: “Other” or “Refuse to answer”.


Stratified by Site

CCHMC CHOP Colorado Lurie National Nationwide Nemours Seattle Stanford Texas Overall
N=1,132,479 N=1,732,454 N=1,458,761 N=1,032,162 N=1,800,977 N=1,218,843 N=1,948,410 N=910,203 N=930,790 N=2,850,026 N=15,015,105
Age at First Visit (in years)
0 369,917 (32.7%) 674,153 (38.9%) 448,254 (30.7%) 357,465 (34.6%) 509,812 (28.3%) 454,494 (37.3%) 680,431 (34.9%) 229,159 (25.2%) 222,637 (23.9%) 1,034,796 (36.3%) 4,981,118 (33.2%)
1 - 4 218,602 (19.3%) 400,995 (23.1%) 381,521 (26.2%) 247,410 (24.0%) 340,049 (18.9%) 282,065 (23.1%) 472,405 (24.2%) 220,519 (24.2%) 134,473 (14.4%) 641,014 (22.5%) 3,339,053 (22.2%)
5 - 11 248,784 (22.0%) 368,760 (21.3%) 315,257 (21.6%) 235,250 (22.8%) 402,073 (22.3%) 258,919 (21.2%) 480,544 (24.7%) 226,238 (24.9%) 171,441 (18.4%) 555,795 (19.5%) 3,263,061 (21.7%)
12 - 17 178,314 (15.7%) 212,941 (12.3%) 199,327 (13.7%) 153,640 (14.9%) 252,151 (14.0%) 162,273 (13.3%) 283,112 (14.5%) 178,771 (19.6%) 135,394 (14.5%) 287,967 (10.1%) 2,043,890 (13.6%)
18 - 24 30,749 (2.7%) 15,892 (0.9%) 30,559 (2.1%) 8,022 (0.8%) 96,708 (5.4%) 19,703 (1.6%) 7,470 (0.4%) 15,883 (1.7%) 60,496 (6.5%) 46,472 (1.6%) 331,954 (2.2%)
25+ 86,113 (7.6%) 59,713 (3.4%) 58,390 (4.0%) 30,375 (2.9%) 200,158 (11.1%) 41,389 (3.4%) 24,379 (1.3%) 38,429 (4.2%) 206,349 (22.2%) 283,909 (10.0%) 1,029,204 (6.9%)
Mean 8.6 5.7 6.7 6.1 9.2 6.1 5.3 7.6 13.6 8.0 7.5
Median [Q1, Q3] 4.4 [0.3, 12.4] 2.4 [0.1, 8.8] 3.3 [0.6, 10.2] 3.1 [0.3, 9.8] 5.7 [0.6, 14.0] 2.5 [0.2, 9.5] 3.1 [0.2, 9.2] 5.1 [1.0, 12.2] 9.3 [1.2, 22.0] 3.0 [0.2, 10.5] 3.7 [0.4, 11.1]
Age at Last Visit (in years)
0 50,378 (4.4%) 98,991 (5.7%) 107,032 (7.3%) 95,216 (9.2%) 104,046 (5.8%) 58,067 (4.8%) 117,680 (6.0%) 82,510 (9.1%) 58,951 (6.3%) 168,738 (5.9%) 941,609 (6.3%)
1 - 4 176,734 (15.6%) 323,547 (18.7%) 299,279 (20.5%) 233,699 (22.6%) 311,746 (17.3%) 218,589 (17.9%) 376,899 (19.3%) 194,770 (21.4%) 127,443 (13.7%) 509,988 (17.9%) 2,772,694 (18.5%)
5 - 11 282,167 (24.9%) 476,949 (27.5%) 408,464 (28.0%) 313,496 (30.4%) 471,905 (26.2%) 341,585 (28.0%) 611,584 (31.4%) 261,788 (28.8%) 189,006 (20.3%) 780,903 (27.4%) 4,137,847 (27.6%)
12 - 17 280,549 (24.8%) 492,946 (28.5%) 412,382 (28.3%) 279,503 (27.1%) 421,882 (23.4%) 369,110 (30.3%) 625,444 (32.1%) 262,398 (28.8%) 191,258 (20.5%) 683,503 (24.0%) 4,018,975 (26.8%)
18 - 24 188,022 (16.6%) 255,422 (14.7%) 133,430 (9.1%) 74,289 (7.2%) 261,940 (14.5%) 167,011 (13.7%) 180,619 (9.3%) 66,128 (7.3%) 124,647 (13.4%) 344,001 (12.1%) 1,795,509 (12.0%)
25+ 154,629 (13.7%) 84,599 (4.9%) 72,721 (5.0%) 35,959 (3.5%) 229,432 (12.7%) 64,481 (5.3%) 36,115 (1.9%) 41,405 (4.5%) 239,485 (25.7%) 362,820 (12.7%) 1,321,646 (8.8%)
Mean 15.0 12.0 11.3 10.1 13.4 12.3 10.6 10.6 17.9 14.0 12.7
Median [Q1, Q3] 13.4 [6.3, 19.1] 11.5 [5.1, 17.1] 10.2 [4.3, 16.1] 9.0 [3.6, 15.0] 12.2 [5.4, 18.5] 11.8 [5.5, 17.2] 10.5 [4.9, 15.7] 9.6 [3.8, 15.6] 15.2 [6.6, 25.6] 11.6 [5.2, 18.0] 11.4 [5.0, 17.3]
Duration of Follow-up (in years)
Mean 6.4 6.2 4.5 4.0 4.2 6.2 5.2 2.9 4.3 6.0 5.2
Median [Q1, Q3] 5.6 [1.2, 11.3] 4.2 [0.6, 10.5] 2.5 [0.2, 7.5] 1.9 [0.1, 6.5] 2.9 [0.2, 7.0] 5.1 [1.3, 10.3] 3.2 [0.4, 8.3] 1.0 [0.0, 4.8] 2.1 [0.2, 6.7] 4.2 [0.7, 9.8] 3.3 [0.4, 8.6]
Duration of Follow-up for All Chronic Patients (in years)*
Mean 7.7 8.3 6.9 6.6 6.8 8.6 7.3 5.7 5.9 7.8 7.3
Median [Q1, Q3] 7.2 [3.0, 12.4] 7.0 [2.9, 13.0] 5.3 [2.1, 10.7] 5.0 [2.1, 10.1] 6.4 [2.9, 10.4] 8.3 [3.7, 13.3] 5.8 [2.6, 10.8] 4.6 [1.7, 9.0] 4.0 [1.6, 8.8] 6.6 [2.8, 11.9] 6.1 [2.6, 11.2]
Sex
Female 576,638 (50.9%) 854,794 (49.3%) 722,251 (49.5%) 492,091 (47.7%) 914,473 (50.8%) 602,580 (49.4%) 928,378 (47.6%) 446,191 (49.0%) 541,152 (58.1%) 1,508,908 (52.9%) 7,587,456 (50.5%)
Male 555,649 (49.1%) 877,241 (50.6%) 726,496 (49.8%) 539,900 (52.3%) 885,870 (49.2%) 616,182 (50.6%) 1,019,922 (52.3%) 463,867 (51.0%) 389,406 (41.8%) 1,338,072 (46.9%) 7,412,605 (49.4%)
Race
American Indian or Alaska Native 1,543 (0.1%) 1,804 (0.1%) 7,974 (0.5%) 1,647 (0.2%) 9,128 (0.5%) 2,433 (0.2%) 3,293 (0.2%) 12,021 (1.3%) 1,751 (0.2%) 9,661 (0.3%) 51,255 (0.3%)
Asian/Native Hawaiian/Other Pacific Islander 28,982 (2.6%) 82,579 (4.8%) 39,562 (2.7%) 53,571 (5.2%) 105,026 (5.8%) 47,818 (3.9%) 47,608 (2.4%) 94,559 (10.4%) 147,680 (15.9%) 146,498 (5.1%) 793,883 (5.3%)
Black/African American 162,596 (14.4%) 354,478 (20.5%) 82,357 (5.6%) 121,489 (11.8%) 495,360 (27.5%) 226,404 (18.6%) 337,044 (17.3%) 55,060 (6.0%) 17,721 (1.9%) 430,320 (15.1%) 2,282,829 (15.2%)
White 804,213 (71.0%) 933,281 (53.9%) 901,362 (61.8%) 482,921 (46.8%) 591,698 (32.9%) 772,556 (63.4%) 1,053,723 (54.1%) 460,525 (50.6%) 256,791 (27.6%) 1,705,091 (59.8%) 7,962,161 (53.0%)
Multiple race 40,367 (3.6%) 47,871 (2.8%) 95,970 (6.6%) 29,448 (2.9%) 1,515 (0.1%) 69,066 (5.7%) 53,132 (2.7%) 52,282 (5.7%) 26,475 (2.8%) 82,279 (2.9%) 498,405 (3.3%)
Other** 91,927 (8.1%) 287,036 (16.6%) 200,097 (13.7%) 275,450 (26.7%) 371,368 (20.6%) 16,131 (1.3%) 358,256 (18.4%) 203,806 (22.4%) 239,884 (25.8%) 419,030 (14.7%) 2,462,985 (16.4%)
Unknown 2,851 (0.3%) 25,405 (1.5%) 131,439 (9.0%) 67,636 (6.6%) 226,882 (12.6%) 84,435 (6.9%) 95,354 (4.9%) 31,950 (3.5%) 240,488 (25.8%) 57,147 (2.0%) 963,587 (6.4%)
Ethnicity
Yes 60,656 (5.4%) 160,039 (9.2%) 384,285 (26.3%) 314,480 (30.5%) 318,759 (17.7%) 68,271 (5.6%) 367,642 (18.9%) 154,908 (17.0%) 186,101 (20.0%) 998,699 (35.0%) 3,013,840 (20.1%)
No 1,027,225 (90.7%) 1,349,196 (77.9%) 909,273 (62.3%) 586,930 (56.9%) 1,050,391 (58.3%) 1,094,626 (89.8%) 1,455,211 (74.7%) 654,204 (71.9%) 413,845 (44.5%) 1,459,334 (51.2%) 10,000,235 (66.6%)
Other/Unknown 44,598 (3.9%) 223,219 (12.9%) 165,203 (11.3%) 130,752 (12.7%) 431,827 (24.0%) 55,946 (4.6%) 125,557 (6.4%) 101,091 (11.1%) 330,844 (35.5%) 391,993 (13.8%) 2,001,030 (13.3%)
Insurance Payer
Medicare/Medicaid 48,339 (4.3%) 521,918 (30.1%) 338,426 (23.2%) 422,000 (40.9%) 91,520 (5.1%) 520,335 (42.7%) 850,695 (43.7%) 371,782 (40.8%) 239,111 (25.7%) 745,166 (26.1%) 4,149,292 (27.6%)
Private 14,121 (1.2%) 1,171,189 (67.6%) 483,924 (33.2%) 426,932 (41.4%) 683,104 (37.9%) 579,734 (47.6%) 1,057,979 (54.3%) 453,289 (49.8%) 538,958 (57.9%) 1,865,051 (65.4%) 7,274,281 (48.4%)
Other/Unknown 1,070,019 (94.5%) 39,347 (2.3%) 636,411 (43.6%) 183,230 (17.8%) 1,026,353 (57.0%) 118,774 (9.7%) 39,736 (2.0%) 85,132 (9.4%) 152,721 (16.4%) 239,809 (8.4%) 3,591,532 (23.9%)
Medical Complexity (PMCA)
Complex Chronic (malignant, progressive, or 2+ body systems) 80,751 (7.1%) 105,560 (6.1%) 79,840 (5.5%) 46,066 (4.5%) 75,238 (4.2%) 50,695 (4.2%) 94,212 (4.8%) 55,265 (6.1%) 51,639 (5.5%) 125,930 (4.4%) 765,196 (5.1%)
Noncomplex Chronic 108,577 (9.6%) 166,096 (9.6%) 133,063 (9.1%) 68,125 (6.6%) 174,246 (9.7%) 89,754 (7.4%) 188,934 (9.7%) 73,863 (8.1%) 77,109 (8.3%) 244,695 (8.6%) 1,324,462 (8.8%)
No Chronic Disorders 943,151 (83.3%) 1,460,798 (84.3%) 1,220,405 (83.7%) 917,971 (88.9%) 1,551,467 (86.1%) 1,078,394 (88.5%) 1,665,195 (85.5%) 779,871 (85.7%) 802,042 (86.2%) 2,479,328 (87.0%) 12,898,622 (85.9%)

*Chronic refers to patients who were flagged as “Complex Chronic” or “Noncomplex Chronic” using PMCA.

**Other refers to the following responses from the EHR: “Other” or “Refuse to answer”.


Table 2. Selected Health Conditions

Health Conditions N Prevalence per 10,000 patients in database
Appendicitis 104,730 70
Juvenile Idiopathic Arthritis 26,979 18
Asthma 1,348,945 898
Bronchopulmonary dysplasia 35,127 23
Brain tumor 34,690 23
Chronic Granulomatous Disease 498 0
Cystic Fibrosis 13,580 9
Duchenne muscular dystrophy 12,058 8
Inflammatory bowel disease (Ulcerative Colitis + Crohn’s Disease) 45,230 30
Immune Thrombocytopenic Purpura 2,880 2
Leukemia + Lymphoma 46,280 31
Lyme Disease 25,384 17
Sickle Cell Anemia 21,537 14
Seizure Disorder 448,733 299
Type 1 Diabetes 83,984 56