Learning Sessions 12 and 13: Patient and Family Engagement in Research

7/20/20 AND 8/3/20

PRESENTER: Amy Kratchman, BA, Children's Hospital of Philadelphia


Participants will be able to:

  1. Describe an institution-wide response to the increased demand for family engagement in research;
  2. Describe processes of identifying, onboarding, training, and mentoring Research Family Partners and researchers to establish and maintain research partnerships, and collaboratively conduct research; and
  3. Provide examples of Family Partners’ varying levels of engagement in research.


  • Kratchman, BA, Amy; Barkman, MA, Darlene; Conaboy, BA, Kathy; de la Mo e, MSed, Anna; Biblow, MSW, Rachel; and Bevans, PhD, Katherine (2015) " e Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics," Patient Experience Journal: Vol. 2 : Iss. 1 , Article 8. Available at: https://pxjournal.org/journal/vol2/iss1/8 
  • Brodt, M.P.P., Amanda; Norton, M.A., Christine K.; and Kratchman, Amy (2015) "So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research," Patient Experience Journal: Vol. 2 : Iss. 1 , Article 7. Available at:https://pxjournal.org/journal/vol2/iss1/7
  • Forsythe LP, Carman KL, Szydlowski V, et al. Patient Engagement In Research: Early Findings From The Patient-Centered Outcomes Research Institute. Health Aff (Millwood). 2019;38(3):359-367. doi:10.1377/hlthaff.2018.05067. Available at:https://www.healthaffairs.org/doi/pdf/10.1377/hlthaff.2018.05067


Learning Session 12: Patient and Family Partners in Research (Part I)

Learning Session 13: Patient and Family Partners in Research (Part II)