Accelerating Data Value Across a National Community Health Center Network (ADVANCE)
The goal of ADVANCE is to build and maintain a “community laboratory” of Federally Qualified Health Centers (FQHCs) serving safety net patients, including the uninsured, the under-insured, undocumented immigrants, and other vulnerable populations. The ADVANCE Research Data Warehouse (RDW) maintains data on over three million patients and is the nation’s most comprehensive dataset on care and health outcomes in safety net patients. These patients are often underrepresented in claims-based datasets and academic hospital-based research studies. ADVANCE data partners include OCHIN, Health Choice Network, Fenway Health, Kaiser Permanente Center for Health Research, Legacy Health, CareOregon, and Oregon Health and Science University. Data include electronic health record data from over 100 health systems, ambulatory and hospital claims data, community data on social determinants of health (e.g., poverty, pollution), and patient reported outcomes. Through our 18-member patient engagement panel, ADVANCE aims to empower patients to be involved in the research design and implementation process, and take on investigator roles within projects. ADVANCE partners regularly vet research proposals and materials with patients to design patient-centered studies, tools such as patient portals, and patient reported outcomes (PROs).