Research Action for Health Network (REACHnet)
REACHnet seeks to improve the efficiency of and capacity for patient-centered comparative effective research (CER) by establishing an innovative, health informatics-driven data collection, patient engagement, patient recruitment, and trial management infrastructure to serve as a foundation for pragmatic research. REACHnet contains clinical data for 1.7 million active patients and over four million total patients across southeastern Louisiana (primarily the Greater New Orleans and Baton Rouge areas) and central Texas. REACHnet partners include 1) Ochsner Health System; 2) Baylor Scott & White Health; 3) Pennington Biomedical Research Center/Louisiana State University (including the Louisiana Clinical and Translational Science Center); 4) Louisiana State University Health Care Services Division – Lallie Kemp Regional Medical Center; 5) Louisiana State University Health Sciences Center New Orleans/University Medical Center; 6) Tulane University Schools of Medicine and Public Health/Tulane Medical Center (HCA); and 7) Partnership for Achieving Total Health (PATH), a supporting organization of LPHI that administers the Greater New Orleans Health Information Exchange (GNOHIE) among a network of community-based clinics and hospitals. REACHnet has developed the Pragmatic Trial App Suite (PTAS), which operates in clinics on tablets and remotely through mobile devices and a web-based portal to facilitate patient engagement (through the REACHnet Health in Our Hands Patient Network), patient reported outcome collection, trial recruitment, and trial management. REACHnet’s research infrastructure also features IRB alignment and a framework for the linkage of longitudinal data sources (e.g., claims, vital records) for research use cases. REACHnet maintains an active engagement core that supports patient, clinician, researcher, health system leader, and payer engagement through multi-stakeholder advisory groups for research projects, and through the utilization of the Health in Our Hands Patient Network to provide space for the patient voice to inform the research team and ensure projects are addressing the issues and outcomes most important to the community. REACHnet’s primary research focus areas are diabetes, weight management, sickle cell disease, and rare cancers.