Leads: Matthew Daley (PORTAL CDRN)
Co-Lead(s): Goutham Rao (CAPriCORN CDRN)
While clinical practice guidelines for the diagnosis and treatment of pediatric hypertension have been available for decades, most cases of hypertension in children and adolescents are undiagnosed, and little is known about the long-term outcomes of pediatric hypertension. Important knowledge gaps with respect to pediatric hypertension could be addressed with epidemiological and clinical studies in large health care systems with electronic health records. While it is widely acknowledged that clinical care for pediatric hypertension is suboptimal, parents and patients have not been engaged by the health care delivery system in finding solutions which improve care and outcomes. The overall objective of the Pediatric Hypertension Research Interest Group (RIG) is to develop the capacity to conduct high value, patient-informed and patient-centered research on pediatric hypertension within PCORnet.
Prioritization of condition-specific research topics:
- The process will involve multiple stakeholders from the pediatric hypertension community: researchers, clinicians, patients, and family members
- An online platform will be used that will allow participants to rank and edit research topics.
- If you would like to take part in this activity, please send us an email at firstname.lastname@example.org