Pediatric Rheumatology Clusters


Variable Name

dx_rheumatology

Created

2023

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weiss_rheum_clusters_final.csv (94.91 KB)
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Abstract

This concept set was utilized to identify pediatric rheumatology conditions in PEDSnet.

Affiliation(s)

PEDSnet Data Coordinating Center

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Provenance

Created with Pamela Weiss as part of her BACK-OFF JSpA Study, which focused on recruitment of patients with Juvenile Spondyloarthritis.

Description

This concept set was developed by a group of pediatric rheumatologists, led by Dr. Pamela Weiss, and one clinical informatician, Levon Utidjian. The group organized SNOMED concepts for diagnoses codes related to pediatric rheumatology with classification into categories of: Autoinflammatory, Connective Tissue Disorders, JIA (juvenile idiopathic arthritis), Labs, Other arthritis, Pain, Uveitis and Vasculitis. There is further sub-classification into clusters.

Technical note: this code set is designed for use with the PEDSnet data model. Two additional columns for classification in categories and clusters within categories are included.

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Biologic Abatement and Capturing Kids' Outcomes and Flare Frequency in Juvenile Spondyloarthritis ('BACK-OFF JSpA')
Affiliation:Children's Hospital of Philadelphia
Study to compare the likelihood of disease flare associated with fixed standard dosing, fixed longer dosing intervals, or stopping tumor necrosis factor inhibitor (TNFi) with spondyloarthritis who have inactive disease. Additionally, this study was aimed to compare the patients' lived experiences in the three treatment arms.

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a CC-BY Attribution 4.0 License.
Except where otherwised noted, this item's license is described as a CC-BY Attribution 4.0 License.

Cite this Concept Set

Utidjian, L. & Weiss, P. (2022, December). Pediatric Rheumatology Clusters. [Concept Set]. PEDSpace Knowledge Bank. https://doi.org/10.24373/pdsp-109