Publications

PEDSnet has published a total of 35 studies.

2019

Strengthening the Evidence Base for Pediatric Medical Devices Using Real-World Data
Fleurance, RL, Forrest CB, Shuren J. Strengthening the Evidence Base for Pediatric Medical Devices Using Real-World Data. Journal of Pediatrics, 2019. doi.org/10.1016/j.jpeds.2019.06.060

Design and Refinement of a Data Quality Assessment Workflow for a Large Pediatric Research Network
Khare R, Utidjian L, Razzaghi H et al. Design and Refinement of a Data Quality Assessment Workflow for a Large Pediatric Research Network. eGEMs (Generating Evidence & Methods to improve patient outcomes). 2019;7(1):36. doi:10.5334/egems.294

Development and Evaluation of a Computable Phenotype to Identify Pediatric Leukemia and Lymphoma Patients Treated with Chemotherapy using Electronic Health Record Data 
Phillips CA, Razzaghi H, Aglio T, McNeil MJ, Salvensen-Quinn M, Sopfe J, Wilkes JJ, Forrest CB, Bailey LC. (2019). Development and Evaluation of a Computable Phenotype to Identify Pediatric Leukemia and Lymphoma Patients Treated with Chemotherapy using Electronic Health Record Data. Pediatric Blood and Cancer, 2019; 66:e27876. 

Use of EHR-Based Pediatric Quality Measures
Hartley, D, Jonas, S, Grossoehme, D, Kelly, A, Dodds, C, Alford, S, Shenkman, E, Simmons, J, Bailey, L, Razzaghi, H, Utidjian, L, McCafferty-Fernandez, J, Cole, F, Smallwood, J, Werk, L and Walsh, K. Use of EHR-Based Pediatric Quality Measures: Views of Health System Leaders and Parents. American Journal of Medical Quality, 2019. p.106286061985032.

Developing Pediatric Patient Safety Research Priorities
Miller M, Mistry K. Developing Pediatric Patient Safety Research Priorities. Pediatrics, 2019; 143(2), p.e20182970.

Priorities for Pediatric Patient Safety Research
Hoffman J, Keeling N, Forrest C, Tubbs-Cooley H, Moore E, Oehler E, Wilson S, Schainker E, Walsh K. Priorities for Pediatric Patient Safety Research. Pediatrics, 2018; 143(2), p.e20180496.

Maternal Antibiotic Use During Pregnancy and Childhood Obesity at Age 5 Years
Herman W, Daley M, Boone-Heinonen J, Rifas-Shiman S, Bailey L, Forrest CB, Young J, Gillman M, Horgan C, Janicke D, Jenter C, Kharbanda E, Lunford D, Messito M, Toh S, Block J. Maternal Antibiotic Use During Pregnancy and Childhood Obesity at Age 5 Years. International Journal of Obesity, 2018.

2018

Learning Health Systems
Deans K, Sabihi S, Forrest C. Learning Health Systems. U.S. National Library of Medicine, 2018.

Early Antibiotic Exposure and Weight Outcomes in Young Children

Block J, Bailey L, Gillman M, Lunsford D, Daley, M, Eneli I, Finkelstein J, Heerman W, Horgan C, Hsia D, Jay M, Rao G, Reynolds J, Rifas-Shiman S, Sturtevant J, Toh S, Trasande L, Young J and Forrest C. Early Antibiotic Exposure and Weight Outcomes in Young Children. Pediatrics, 2018; 142(6), p.e20180290.

Comparative Effectiveness of Bariatric Procedures Among Adolescents: the PCORnet Bariatric Study
Inge T, Coley R, Bazzano L, Xanthakos S, McTigue K, Arterburn D, Williams N, Wellman R, Coleman K, Courcoulas A, Desai N, Anau J, Pardee R, Toh S, Janning C, Cook A, Sturtevant J, Horgan C, Zebrick A, Michalsky M and P. C. B. S. Collaborative. Comparative Effectiveness of Bariatric Procedures Among Adolescents: The PCORnet Bariatric Study. Surgery for Obesity and Relaedt Diseases, 2018; 14(9): 1374-1386.

A Bayesian Latent Class Approach for EHR-based Phenotyping
Hubbard R, Huang J, Harton J, Oganisian A, Choi G, Utidjian L, Eneli I, Bailey L and Chen Y. A Bayesian Latent Class Approach for EHR-based Phenotyping. Stat Med, 2018; 38(1): 74-87.

Comparative Effectiveness and Safety of Bariatric Procedures for Weight Loss: A PCORnet Cohort Study
Arterburn D, Wellman R, Emiliano A, Smith S, Odegaard A, Murali S, Williams N, Coleman K, Courcoulas A, Coley R, Anau J, Pardee R, Toh S, Janning C, Cook A, Sturtevant J, Horgan C, McTigue K and P. C. B. S. Collaborative. Comparative Effectiveness and Safety of Bariatric Procedures for Weight Loss: A PCORnet Cohort Study. Ann Intern Med, 2018; 169(11): 741-750.

Developing a Framework for the Ethical Design and Conduct of Pragmatic Trials in Healthcare: a Mixed Methods Research Protocol
Taljaard M, Weijer C, Grimshaw J, Ali A, Brehaut J, Campbell M, Carroll K, Edwards S, Eldridge S, Forrest C, Giraudeau B, Goldstein C, Graham I, Hemming K, Hey S, Horn A, Jairath V, Klassen T, London A, Marlin S, Marshall J, McIntyre L, McKenzie J, Nicholls S, Paprica P, Zwarenstein M and Fergusson D. Developing a Framework for the Ethical Design and Conduct of Pragmatic Trials in Healthcare: A Mixed Methods Research Protocol." Trials, 2018;19(1): 525.

Being Overweight or Obese and the Development of Asthma
Lang J, Bunnell T, Hossain M, Wysocki T, Lima J, Finkel H, Bacharier L, Dempsey A, Sarzynsk L, Test M, Forrest C. Being Overweight or Obese and the Development of Asthma. Pediatrics, 2018; 142(6). doi: 10.1542/peds.2018-2119.

Methods for Examining Data Quality in Healthcare Integrated Data Repositories
Huser V, Kahn M, Brown J and Gouripeddi R. Methods for Examining Data Quality in Healthcare Integrated Data Repositories. Pac Symp Biocomput, 2018; 23: 628-633.

Predicting Causes of Data Quality Issues in a Clinical Data Research Network
Khare R, Ruth B, Miller M, Tucker J, Utidjian L, Razzaghi H, Patibandla N, Burrows E and Bailey L. Predicting Causes of Data Quality Issues in a Clinical Data Research Network. AMIA Jt Summits Transl Sci Proc, 2018; 2017: 113-121.   

From Strangers in a Foreign Land to Active, Engaged Citizens
Scharpen A and Stille C. From Strangers in a Foreign Land to Active, Engaged Citizens. Pediatrics, 2018; 141(2). 

PCORnet Antibiotics and Childhood Growth Study: Process for Cohort Creation and Cohort Description
Block J, Bailey L, Gillman M, Lunsford D, Boone-Heinonen J, Cleveland L, Finkelstein J, Horgan C, Jay M, Reynolds J, Sturtevant J, Forrest C and P. C. A. C. G. S. Group. PCORnet Antibiotics and Childhood Growth Study: Process for Cohort Creation and Cohort Description. Acad Pediatr, 2018; 18(5): 569-576.

Retrospective Analysis of Candida-related Conditions in Infancy and Early Childhood Caries
Jean J, Goldberg S, Khare R, Bailey L, Forrest C, Hajishengallis E and Koo H. Retrospective Analysis of Candida-related Conditions in Infancy and Early Childhood Caries. Pediatr Dent, 2018; 40(2), 131-135.

PCORnet's Collaborative Research Groups
Pletcher M, Forrest C and Carton T. PCORnet's Collaborative Research Groups. Patient Related Outcome Measures, 2018; 9, 91-95. doi: 10.2147/PROM.S141630

Large Databases for Pediatric Research on Children with Autism Spectrum Disorder
Block J, Bailey L, Gillman M, Lunsford D, Boone-Heinonen J, Cleveland P, Finkelstein J, Horgan C, Jay M, Reynolds J, Sturtevant J, Forrest C and P. C. A. C. G. S. Group. PCORnet Antibiotics and Childhood Growth Study: Process for Cohort Creation and Cohort Description. Acad Pediatr, 2018; 18(5): 569-576.

2017

The National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study Cohort: Rationale, Methods, and Baseline Characteristics
Block J, Bailey L, Gillman M, Lunsford D, Boone-Heinonen J, Cleveland L, Finkelstein J, Horgan C, Jay M, Reynolds J, Sturtevant J, Forrest C and P. C. A. C. G. S. Group. PCORnet Antibiotics and Childhood Growth Study: Process for Cohort Creation and Cohort Description. Acad Pediatr, 2017; 18(5): 569-576.

Development of the Learning Health System Researcher Core Competencies
Forrest C, Chesley F Jr, Tregear M and Mistry K. Development of the Learning Health System Researcher Core Competencies. Health Serv Res, 2017. 

Applying Evidence From Clinical Trials: Need for Pediatric Learning Health System Research
Mistry K and Forrest C. Applying Evidence From Clinical Trials: Need for Pediatric Learning Health System Research. Pediatrics, 2017; 140(6). 

A Comparison of Data Quality Assessment Checks in Six Data Sharing Networks
Callahan T, Bauck A, Bertoch D, Brown J, Khare R, Ryan P, Staab J, Zozus M and Kahn M. A Comparison of Data Quality Assessment Checks in Six Data Sharing Networks. EGEMS (Wash DC), 2017; 5(1): 8.

A Longitudinal Analysis of Data Quality in a Large Pediatric Data Research  Network
Khare R, Utidjian L, Ruth B, Kahn M, Burrows E, Marsolo K, Patibandla N, Razzaghi H, Colvin R, Ranade D, Kitzmiller M, Eckrich D and Bailey C. A Longitudinal Analysis of Data Quality in a Large Pediatric Data Research Network. J Am Med Inform Assoc, 2017; 24(6): 1072-1079.

Antibiotics, Infections, and Childhood Obesity
Forrest C, Block J and Bailey L. Antibiotics, Infections, and Childhood Obesity. Lancet Diabetes Endocrinol, 2017; 5(1), 2-3. 

2016

Building Learning Health Systems to Accelerate Research and Improve Outcomes of Clinical Care in Low- and Middle-Income Countries
English M, Irimu G, Agweyu A, Gathara D, Oliwa J, Ayieko P, Were F, Paton C, Tunis S and Forrest C. Building Learning Health Systems to Accelerate Research and Improve Outcomes of Clinical Care in Low- and Middle-Income Countries. PLoS Med, 2016; 13(4): e1001991.

Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research
Pasquali S, Jacobs J, Farber G, Bertoch D, Blume E, Burns K, Campbell R, Chang A, Chung W, Riehle-Colarusso T, Curtis L, Forrest C, Gaynor W, Gaies M, Go A, Henchey P, Martin G, Pearson G, Pemberton V, Schwartz S, Vincent R and Kaltman J. Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research. Circulation, 2016; 133(14): 1410-1418.

Learning Health Systems as Facilitators of Precision Medicine
Ramsey L, Mizuno T, Vinks A and Margolis P. Learning Health Systems as Facilitators of Precision Medicine. Clin Pharmacol Ther, 2016; 101(3), 359-367. 

2014

Addressing Electronic Clinical Information in the Construction of Quality Measures
Bailey L, Mistry K, Tinoco A, Earls M, Rallins M, Hanley K, Christensen K, Jones M and Woods D. Addressing electronic clinical information in the construction of quality measures. Acad Pediatr, 2014; 14(5 Suppl): S82-89.

Building a Common Pediatric Research Terminology for Accelerating Child Health Research
Kahn M, Bailey L, Forrest C, Padula M and Hirschfeld S. Building a common pediatric research terminology for accelerating child health research. Pediatrics, 2014; 133(3), 516-525. 

PEDSnet: a National Pediatric Learning Health System
Forrest C, Margolis P, Bailey L, Marsolo K, Del Beccaro M, Finkelstein J, Milov D, Vieland V, Wolf B, Yu F and Kahn M. PEDSnet: a National Pediatric Learning Health System. J Am Med Inform Assoc, 2014; 21(4): 602-606.

PEDSnet: How a Prototype Pediatric Learning Health System is Being Expanded into a National Network
Forrest C, Margolis P, Seid M and Colletti R. PEDSnet: how a prototype pediatric learning health system is being expanded into a national network. Health Aff (Millwood), 2014; 33(7), 1171-1177. doi: 10.1377/hlthaff.2014.0127

2013

Multi-Institutional Sharing of Electronic Health Record Data to Assess Childhood Obesity
Bailey L, Milov D, Kelleher K, Kahn M, Del Beccaro M, Yu F, Richards T and Forrest C. Multi-Institutional Sharing of Electronic Health Record Data to Assess Childhood Obesity. PLoS One, 2013; 8(6): e66192.