PEDSnet Production Database (2025-01)

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dc.contributor.authorPEDSnet
dc.contributor.otherChildren's Hospital of Philadelphia
dc.contributor.otherStandford Medicine Children's Health
dc.contributor.otherNationwide Children's Hospital
dc.contributor.otherChildren's Hospital Colorado
dc.contributor.otherSeattle Children's Hospital
dc.contributor.otherAnn & Robert H. Lurie Children's Hospital of Chicago
dc.contributor.otherTexas Children's Hospital
dc.contributor.otherChildren's National Hospital
dc.date.accessioned2025-03-12T12:38:05Z
dc.date.created2025-01
dc.date.submitted2024-10
dc.descriptionThis database uses the PEDSnet Common Data Model and consists of 24 tables that represent over 14 million patients. PEDSnet’s data network is one of the valuable resources it brings to accelerating the study of child health. The PEDSnet Coordinating Center partners with the informatics teams at each PEDSnet institution to continually assess current network data and strengthen the data infrastructure for a wide range of studies. <br> <br> <details> <summary>PEDSnet Database Population</summary> <br> ##### **Total Database Population** |Active (visit in last 18 months) |Overall | |--------------------------------|------------------| |N=5,502,863 |N=14,266,572 | {.dqcheck-table} <br> ##### **Database Population by Collaborating Institution** | **Institution** | Active|Overall | |------------------------------------------------------------|--------------------------------|------------------| |CCHMC |518,151 (9.4%) |1,090,047 (7.6%) | |CHOP |690,697 (12.6%) |1,664,458 (11.7%) | |Colorado |434,461 (7.9%) |1,395,086 (9.8%) | |Lurie |302,830 (5.5%) |984,225 (6.9%) | |National |650,142 (11.8%) |1,680,087 (11.8%) | |Nationwide |485,087 (8.8%) |1,138,145 (8.0%) | |Nemours |692,278 (12.6%) |1,852,974 (13.0%) | |Seattle |245,093 (4.5%) |859,788 (6.0%) | |Stanford |354,344 (6.4%) |876,281 (6.1%) | |Texas |1,129,780 (20.5%) |2,725,481 (19.1%) | {.dqcheck-table} <br> ##### **Age at first Visit** | **Age (in years)** |Active (visit in last 18 months)|Overall| |------------------------------------------------------------|--------------------------------|------------------| |0 |2,572,896 (46.8%) |4,705,951 (33.0%) | |4-Jan |1,258,963 (22.9%) |3,195,992 (22.4%) | |11-May |978,192 (17.8%) |3,119,302 (21.9%) | |17-Dec |419,117 (7.6%) |1,944,787 (13.6%) | |18 - 24 |55,717 (1.0%) |313,021 (2.2%) | |25+ |217,978 (4.0%) |959,816 (6.7%) | |Mean |4.9 |7.5 | |Median [Q1, Q3] |1.3 [0.0, 6.6] |3.7 [0.4, 11.1] | {.dqcheck-table} <br> ##### **Age at Last Visit** | **Age (in years)** |Active |Overall | |------------------------------------------------------------|--------------------------------|------------------| |0 |324,258 (5.9%) |903,843 (6.3%) | |4-Jan |1,142,258 (20.8%) |2,690,611 (18.9%) | |11-May |1,787,033 (32.5%) |3,969,224 (27.8%) | |17-Dec |1,446,719 (26.3%) |3,785,470 (26.5%) | |18 - 24 |485,595 (8.8%) |1,669,617 (11.7%) | |25+ |317,000 (5.8%) |1,220,104 (8.6%) | |Mean |11.2 |12.5 | |Median [Q1, Q3] |9.9 [4.6, 15.6] |11.2 [4.9, 17.1] | {.dqcheck-table} <br> ##### **Duration of Follow-up (in years)** | | Active|Overall | |------------------------------------------------------------|--------------------------------|------------------| |Mean |6.4 |5.1 | |Median [Q1, Q3] |5.1 [1.6, 10.1] |3.2 [0.4, 8.4] | {.dqcheck-table} <br> ##### **Duration of Follow-up for All Chronic Patients (in years)** | |Active|Overall | |------------------------------------------------------------|--------------------------------|------------------| |Mean |7.8 |7.2 | |Median [Q1, Q3] |6.8 [3.1, 11.8] |6.0 [2.5, 11.1] | {.dqcheck-table} <br> ##### **Year of Cohort Entry** | | Active|Overall | |------------------------------------------------------------|--------------------------------|------------------| |Mean |2017 |2015 | |Median [Q1, Q3] |2018 [2013, 2022] |2015 [2011, 2019] | {.dqcheck-table} <br> ##### **Insurance** | **Payer** |Active |Overall | |------------------------------------------------------------|--------------------------------|------------------| |Medicare/Medicaid |1,635,194 (29.7%) |3,976,139 (27.9%) | |Private |2,639,882 (48.0%) |6,914,510 (48.5%) | |Other/Unknown |1,227,787 (22.3%) |3,375,923 (23.7%) | {.dqcheck-table} <br> ##### **Medical Complexity** | **PMCA** |Active |Overall | |-----------------------------------------------------------------|---------|------------------------------------------| |Complex Chronic (malignant, progressive, or 2+ body systems)|491,360 (8.9%) |722,557 (5.1%) | |Noncomplex Chronic |784,980 (14.3%) |1,234,295 (8.7%) | |No Chronic Disorders |4,226,523 (76.8%) |12,282,017 (86.1%)| {.dqcheck-table} <br> </details> <br> <details> <summary>Demographics</summary> <br> | **Sex** | Active|Overall | |------------------------------------------------------------|--------------------------------|------------------| |Female |2,779,381 (50.5%) |7,202,600 (50.5%) | |Male |2,722,463 (49.5%) |7,049,052 (49.4%) | {.dqcheck-table} <br> | **Race** | Active|Overall | |------------------------------------------------------------|--------------------------------|------------------| |American Indian or Alaska Native |17,919 (0.3%) |47,866 (0.3%) | |Asian/Native Hawaiian/Other Pacific Islander |329,449 (6.0%) |744,846 (5.2%) | |Black/African American |939,968 (17.1%) |2,182,847 (15.3%) | |White |2,901,233 (52.7%) |7,598,487 (53.3%) | |Multiple race |220,361 (4.0%) |460,030 (3.2%) | |Other** |777,236 (14.1%) |2,012,918 (14.1%) | |Unknown |316,697 (5.8%) |1,219,578 (8.5%) | {.dqcheck-table} <br> | **Ethnicity** | Active|Overall | |------------------------------------------------------------|--------------------------------|------------------| |Hispanic |1,207,794 (21.9%) |2,814,420 (19.7%) | |Not Hispanic |3,806,589 (69.2%) |9,536,181 (66.8%) | |Other/Unknown |488,480 (8.9%) |1,915,971 (13.4%) | {.dqcheck-table} <br> </details> <br> <details> <summary>Prevalence of Common Health Conditions</summary> <br> |Conditions |N |Prevalence per 10,000 patients| |-----------------------------------------------------------------|---------|------------------------------------------| |Appendicitis |98,105 |69 | |Juvenile Idiopathic Arthritis |25,630 |18 | |Asthma |1,279,572|897 | |Bronchopulmonary dysplasia |32,702 |23 | |Brain tumor |33,117 |23 | |Chronic Granulomatous Disease |450 |0 | |Cystic Fibrosis |13,200 |9 | |Duchenne muscular dystrophy |11,515 |8 | |Inflammatory bowel disease (Ulcerative Colitis + Crohn’s Disease)|42,669 |30 | |Immune Thrombocytopenic Purpura |2,456 |2 | |Leukemia + Lymphoma |44,639 |31 | |Lyme Disease |24,104 |17 | |Sickle Cell Anemia |20,844 |15 | |Seizure Disorder |425,370 |298 | |Type 1 Diabetes |80,273 |56 | {.dqcheck-table} </details> <br>
dc.description.abstractPEDSnet production database containing de-identified aggregate electronic healthcare information for ten contributing pediatric healthcare institutions. This database corresponds to Version 5.6 of the PEDSnet data model. <br> <br> #### **Learn about how to access PEDSnet data for research [here](https://pedsnet.org/database/access-to-data/).** <br> #### **Submit a [collaboration request](https://pedsnet.org/work-with-us/collaboration-request/).** <br>
dc.identifier.urihttps://hdl.handle.net/20.500.14642/979
dc.publisherPEDSnet
dc.relationPEDSnet Common Data Model, v5.6
dc.relation.urihttps://pedsnet.org/database/access-to-data/
dc.rightsa BSD 2-Clause License.
dc.rights.urihttps://opensource.org/license/bsd-2-clause
dc.titlePEDSnet Production Database (2025-01)
dspace.entity.typeDocumentation
project.endDate2024-12
project.startDate2024-10
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