PCORnet Common Data Model

Created

2025-01

Submission Date

Data Collection

Files

4 Downloads↓
PCORnet-Data-Checks-v17.pdf (195.34 KB)
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2025_01_23_PCORnet-Common-Data-Model-v70.pdf (3.5 MB)
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2024_12_23_PCORnet_CDM_ValueSet_ReferenceFile-v1.14.xlsx (252.48 KB)
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2025_01_23_PCORnet_Common_Data_Model_v70.xlsx (722.51 KB)
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Abstract

Documentation created by PCORnet® Network Partners for standardizing millions of data points from clinical information systems participating in the PCORnet Network into a common format.

Affiliation(s)

Patient-Centered Outcomes Research Network

Provenance

Current Version: v7.0

Description

The PCORnet® CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. PCORnet developed the PCORnet DRN to be a “…functional distributed research network that facilitates multi-site patient–centered research across the Clinical Research Networks (CRNs) and other interested contributors. The distributed network will enable the conduct of observational research and clinical trials while allowing each participating organization to maintain physical and operational control over its data.” [Data Standards, Security, and Network Infrastructure Task Force (DSSNI charter), 2014]
For more details of PCORnet® CDM development, additional references include:

PCORnet® CDM abstracts presented at scientific conferences: https://github.com/CDMFORUM/CDM-GUIDANCE/wiki/CDM-related-Abstract

The following four documents are available for data collaboration with PCORnet:

Data Model

Includes implementation guidance, table summaries, and table specifications of the CDM.

Data Checks

This document describes required data quality checks - included in PCORnet’s foundational data curation package - that must be passed by all network partners. Exceptions to investigative data checks are permitted but must be explained in an online annotated data dictionary.

Value Set Reference File

Controlled vocabulary lists for specified fields in the Data Model.

Parseable Data Model

Tabular format of the CDM.


Version Updates from v6.1 to v7.0

V7.0 2025-01-23 Please note: v7.0 updates are highlighted in green to assist with visually scanning the document (in addition to the descriptive comments). The v7.0 release includes:

  • Two new tables (EXTERNAL_MEDS, PAT_RELATIONSHIP).

  • 8 new fields in DEMOGRAPHIC and and PRIVATE_DEMOGRAPHIC (RACE_ETH_MISSING, RACE_ETH_AI_AN, RACE_ETH_ASIAN, RACE_ETH_BLACK, RACE_ETH_HISPANIC, RACE_ETH_ME_NA, RACE_ETH_NH_PI, RACE_ETH_WHITE).

  • 4 new fields in LDS_ADDRESS_HISTORY and PRIVATE_ADDRESS_HISTORY (STATE_FIPS, COUNTY_FIPS, RUCA_ZIP, CURRENT_ADDRESS_FLAG).

  • 1 new field in PRO_CM (PRO_CODE).

  • 5 renamed fields in PRO_CM (PRO_FULLNAME, PRO_NAME, PRO_SEQ, PRO_TEXT, PRO_VERSION).

  • 10 deprecated fields in PRO_CM (PRO_ITEM_LOINC, PRO_MEASURE_NAME, PRO_MEASURE_SCORE, PRO_MEASURE_THETA, PRO_MEASURE_SCALED_TSCORE, PRO_MEASURE_STANDARD_ERROR, PRO_MEASURE_COUNT_SCORED, PRO_MEASURE_LOINC, PRO_MEASURE_VERSION, PRO_MEASURE_FULLNAME).

  • Update to ADDRESS_USE valueset in LDS_ADDRESS_HISTORY and PRIVATE_ADDRESS_HISTORY.

  • Updates to guidance for RACE and HISPANIC in DEMOGRAPHIC and PRIVATE_DEMOGRAPHIC.

  • Updates to the table-level guidance and example of populated records for PRO_CM.

  • Updates to the General Guidance for LOINC Panel codes.

  • Updates to the RxNorm Term Type reference tables in PRESCRIBING.

  • Updates to “The Continuum of Medication-related Data Domains” figure.

  • Various updates to the Value Set Reference File and Parseable File (see INFO tabs in those files for more detail).

Development Code

Vocabulary

Related Publications

Creative Commons license

a CC-BY 4.0 Attribution License.
Except where otherwised noted, this item's license is described as a CC-BY 4.0 Attribution License.

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