Turner Syndrome

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Phenotype Description

This phenotype was used to define a cohort of patients with Turner Syndrome (TS) for the “Investigating timing of diagnosis and equitable care in children with Turner syndrome” study run by Chijioke Ikomi. The cohort was used for analysis of diagnosis date by demographics, rurality, and pre/post changes in guidelines in 2017.

Funder(s)

Provenance

This was created for the study "Investigating timing of diagnosis and equitable care in children with Turner syndrome". The cohort described by the phenotype was the central cohort used to investigate timing of diagnosis.

Algothrithm Description

The project used an existing computational phenotype for TS and narrowed the cohort to those diagnosed after 2011 (due to data quality issues in the 2010 data) and at <=21 years old.

Development Code

Related Resource

PEDSnet Production Database (2024-04)
(2024-04) PEDSnet Data Coordinating Center
PEDSnet production database containing de-identified aggregate electronic healthcare information for ten contributing pediatric healthcare institutions. This database corresponds to Version 5.3 of the PEDSnet data model.

#### **Learn about how to access PEDSnet data for research [here](https://pedsnet.org/database/access-to-data/).**
#### **Submit a [collaboration request](https://pedsnet.org/work-with-us/collaboration-request/).**

Related Concept Set

Related Person

Related Phenotype

Related Study

Investigating Timing of Diagnosis and Equitable Care in Children with Turner Syndrome
Nemours Children's Health System
Study to determine if diagnosis rates of Turner syndrome have improved since 2017 with increased recommendation of noninvasive prenatal testing (NIPT) and to investigate the association between age at diagnosis of Turner syndrome and race, ethnicity, and socio-economic status.

Related Publications

Creative Commons license

Except where otherwised noted, this item's license is described as Noninvasive Prenatal Testing