PEDSnet Stakeholder-Informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools
| dc.contributor | Patient-Centered Outcomes Research Institute |
| dc.contributor.author | Forrest, Christopher |
| dc.contributor.other | Children's Hospital of Philadelphia |
| dc.date.accessioned | 2024-10-25T21:12:01Z |
| dc.description | The PEDSnet Stakeholder-informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools is part of PEDSnet’s Phase 3 Infrastructure Grant from PCORI. A key goal of Phase 3 of PEDSnet is to meaningfully engage patients and families in research and research decision-making, and use stakeholder-informed priorities as a framework for future PEDSnet project funding decisions. This set of studies aims to develop a prioritized list of research projects that will generate new evidence that can have an immediate impact on patient health outcomes. <br> Each study will focus on one of three priority areas: - Intellectual and Developmental Disabilities (IDD), - Pulmonology, - Nephrology. |
| dc.description.abstract | Part of a PEDSnet’s Phase 3 Infrastructure Grant from PCORI to meaningfully engage patients and families in research and research decision-making, and use stakeholder-informed priorities as a framework for future PEDSnet project funding decisions. |
| dc.identifier.uri | https://hdl.handle.net/20.500.14642/851 |
| dc.publisher | PEDSnet |
| dc.rights | a CC-BY 4.0 Attribution license. |
| dc.rights.uri | https://creativecommons.org/licenses/by-sa/4.0/ |
| dc.subject | PEDSnet Data Source |
| dc.subject | PCORI Funded Research |
| dc.subject.mesh | Health Services Research |
| dc.subject.mesh | Research |
| dc.subject.mesh | Pathological Conditions, Signs and Symptoms |
| dc.title | PEDSnet Stakeholder-Informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools |
| dspace.entity.type | Study |
| project.startDate | 2024 |
| relation.isOrgUnitOfStudy | 5711a12d-78b1-4461-9108-f7ce104cd079 |
| relation.isOrgUnitOfStudy | 23987a66-a20e-4456-b093-d9bd718aca53 |
| relation.isOrgUnitOfStudy | 19a20b64-74c5-4203-8aff-7e39b19ed2ae |
| relation.isOrgUnitOfStudy.latestForDiscovery | da841c56-bb55-405c-8b50-8f221ef62890 |
| relation.isStudyOfStudy | b1b83eea-a6bc-4079-8784-d157ee3a19b4 |
| relation.isStudyOfStudy | fce91a84-f55b-442d-b551-be8d791fa5f1 |
| relation.isStudyOfStudy.latestForDiscovery | b1b83eea-a6bc-4079-8784-d157ee3a19b4 |