PEDSnet Stakeholder-Informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools
| dc.contributor | Patient-Centered Outcomes Research Institute |
| dc.contributor.author | Forrest, Christopher |
| dc.contributor.other | Children's Hospital of Philadelphia |
| dc.date.accessioned | 2024-10-25T21:12:01Z |
| dc.description | The PEDSnet Stakeholder-informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools is part of PEDSnet’s Phase 3 Infrastructure Grant from PCORI. A key goal of Phase 3 of PEDSnet is to meaningfully engage patients and families in research and research decision-making, and use stakeholder-informed priorities as a framework for future PEDSnet project funding decisions. This set of studies aims to develop a prioritized list of research projects that will generate new evidence that can have an immediate impact on patient health outcomes. <br> Each study will focus on one of three priority areas: - Intellectual and Developmental Disabilities (IDD), - Pulmonology, - Nephrology. |
| dc.description.abstract | Part of a PEDSnet’s Phase 3 Infrastructure Grant from PCORI to meaningfully engage patients and families in research and research decision-making, and use stakeholder-informed priorities as a framework for future PEDSnet project funding decisions. |
| dc.identifier.uri | https://hdl.handle.net/20.500.14642/851 |
| dc.publisher | PEDSnet |
| dc.relation.uri | https://github.com/PEDSnet/idd_randomization |
| dc.relation.uri | https://github.com/PEDSnet/idd_hosp |
| dc.rights | a CC-BY 4.0 Attribution license. |
| dc.rights.uri | https://creativecommons.org/licenses/by-sa/4.0/ |
| dc.subject | PEDSnet Data Source |
| dc.subject | PCORI-Funded Research |
| dc.subject.mesh | Health Services Research |
| dc.subject.mesh | Research |
| dc.subject.mesh | Pathological Conditions, Signs and Symptoms |
| dc.title | PEDSnet Stakeholder-Informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools |
| dc.title.alternative | 2024.FORC.PCORI.DCC |
| dspace.entity.type | Study |
| local.admin.note | Study PM: Colleen, Study Analysts: Eneida Mendonca, Chris Bartlett |
| local.contributor.siteLead | PEDSnet Data Coordinating Center |
| local.contributor.sites | Children�s Hospital of Philadelphia |
| local.contributor.sites | Cincinnati Children�s Hospital Medical Center |
| local.contributor.sites | Texas Children�s Hospital |
| project.endDate | Present |
| project.startDate | 2024 |
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