PEDSpace

Welcome to PEDSpace, a public data bank repository powered by PEDSnet. PEDSpace serves as a centralized hub where digital assets generated during PEDSnet studies are made readily accessible to researchers, clinicians, and stakeholders worldwide.

In PEDSpace, users can explore a wealth of resources to facilitate impactful research endeavors. Among these assets are meticulously defined variables, curated code sets, and modules for assessing data quality. Each component is designed to empower researchers with the tools necessary to navigate complex pediatric healthcare data effectively.

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Explore PEDSpace Collections

Concept Sets

Explore sets of medical codes used to represent a specified clinical concept.

Data Quality Modules

Browse a comprehensive set of functions to aid in data quality assessments of clinical datasets.

PEDSnet Resources

Browse documentation, ETL specifications, and resources for participating PEDSnet sites.

PEDSnet Studies

Learn about completed PEDSnet studies, their associated publications, and related research materials.

Variable Definitions

Explore variables investigated by PEDSnet studies and their respective logic.

Recent Submissions

Research-Ready
Chronic Diabetes
(2022-11-07) Children's Hospital of Philadelphia
Concept set intended to identify patients with a diagnosis of Chronic Diabetes to define a study cohort.
Needs Refinement
Autism Diagnoses
(2023-12-06) Nemours Children's Health
This concept set was developed to identify autism diagnoses to identify patients to define a study cohort
Needs Refinement
Vision Screening in Children With and Without Autism
(2023-12-06) Nemours Children's Health
Phenotype for identifying young children receiving vision screenings at wellness visits and comparing an autistic and non-autistic cohort.
Needs Refinement
Eye and Vision Conditions
(2023-12-06) Nemours Children's Health
This concept set was developed to identify any eye- or vision-affecting condition, ranging from minor and temporary to serious, for exclusion in a study involving vision exams.
Research-Ready
Attention-Deficit/Hyperactivity Disorder (ADHD) Medications
(2024-07-01) Children's Hospital of Philadelphia; Stanford Medicine
Concept set intended to identify patients with an exposure to drugs typically used to treat ADHD in pediatric patients.