PEDSpace
Welcome to PEDSpace, a public data bank repository powered by PEDSnet. PEDSpace serves as a centralized hub where digital assets generated during PEDSnet studies are made readily accessible to researchers, clinicians, and stakeholders worldwide.
In PEDSpace, users can explore a wealth of resources to facilitate impactful research endeavors. Among these assets are meticulously defined variables, curated code sets, and modules for assessing data quality. Each component is designed to empower researchers with the tools necessary to navigate complex pediatric healthcare data effectively.
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Explore PEDSpace Collections
Browse a comprehensive set of functions to aid in data quality assessment of clinical datasets.
Browse a comprehensive index of PEDSnet projects, their associated publications, and related research materials.
Browse documentation, ETL specifications, and resources for participating PEDSnet sites.
Resources for use in defining cohorts and other analytic tasks for investigating EHR data.
Recent Submissions
- Texas Children's HospitalTexas Children’s Hospital, located in Houston, Texas, is a not-for-profit organization whose mission is to create a healthier future for children and women throughout our global community by leading in patient care, education and research. We are proud to be consistently ranked among the top children’s hospitals in the nation.
- Seattle Children's HospitalSeattle Children’s Hospital is the pediatric and adolescent referral center for Washington, Alaska, Montana and Idaho, serving the Pacific Northwest region since it was founded in 1907 and delivering superior patient care and advanced new treatments through pediatric research. We have over 300,000 outpatient visits per year taking place within a robust clinical program serving local Seattle residents as well as 21 regional clinics across three states. Our main campus has over 15,000 inpatient admissions annually and our state of the art Emergency Department, newly opened in 2013, has over 37,000 visits per year. We are the first hospital in the country to open a teen and young adult inpatient cancer unit dedicated to serving the needs of this unique population and housing the Children’s Adolescent and Young Adult Oncology Program. We are also the primary teaching, clinical and research site for the Department of Pediatrics at the University of Washington School of Medicine, training approximately 900 residents and fellows and 750 medical students annually. Our affiliated Research Institute consistently ranks in the top five for pediatric research funding from the National Institutes of Health and our Foundation partners have helped raise over $120,000,000 for our uncompensated/undercompensated care fund ensuring we never had to turn away a child in need.
- Nemours Children's HealthFounded in in 1936, Nemours has grown to become one of the nation’s largest integrated pediatric health systems, providing hospital and clinic-based specialty care, primary care, prevention and health information services, and research and medical education programs dedicated to improving the lives of children and families throughout the Delaware Valley and in Florida. The Nemours Primary Care Research Collaborative (PCRC) is an AHRQ-registered primary-care practice-based research network that now includes more that 30 primary care practices in Delaware, Pennsylvania and Florida providing care to more than 100,000 unique patients in more than 20 community-based locations. Among the 60,000 patients receiving their primary care at a PCRC site in the Delaware Valley, 11% are Hispanic/Latino, 40% Caucasian, and 40% Black/African America. More than half of the patients are on Medicaid and 44% on a commercial insurance. In Central Florida, 13,000 patients are registered at a PCRC site, with 11% identifying as Hispanic/Latino, 43% Caucasian, and 9% African-American.
The Nemours/Alfred I. duPont Hospital for Children is the hub for a system of primary and specialty pediatric clinics with practice locations throughout the Delaware Valley. Among 21 Nemours primary care sites in the Delaware Valley, 10 see more that 10,000 visits annually, 5 more than 15,000 visits annual, and 1 more than 20,000 visits annually. Each of these sites is included in the Primary Care Research Collaborative and will participate in the Pediatric PMI Enrollment Center. The Orlando location has a primary catchment area that encompasses a total of nearly 500,000 pediatric patients, per CY 2014 sources. Counties in the region that make up this area are: Orange, Osceola, and Seminole. The new, $240 million Nemours Children’s Health is located in Lake Nona Medical City in Orlando, FL, and opened for patient care on 2012. This 95-bed facility serves as the hub for an extensive primary care network of 13 practice sites responsible for almost 30,000 children. - Nationwide Children's HospitalNationwide Children’s Hospital (NCH) is a 508-bed hospital with over 18,000 admissions and 1.2 million outpatient visits annually. It also performs nearly 10,000 inpatient and over 17,000 outpatient surgeries annually. Care is provided at 62 sites largely concentrated in central Ohio. NCH operates 15 wholly owned primary care sites that serve 75,000 unique children and adolescents as their medical home. In addition, NCH operates Urgent Care Centers and one of the largest ED’s in the US totaling 250,000 visits per year. NCH also operates the largest pediatric outpatient service at a children’s hospital in the US with more than 180,000 visits per year. All of these sites have been used for research enrollment as have others. NCH’s ChildLab is the largest provider of pediatric labs in the state and operates at numerous sites both in central Ohio and southern and eastern parts of the state. ChildLab has partnered on other research studies. Finally, NCH is also home to Partners for Kids, the largest and oldest pediatric Accountable Care Organization in the US exclusively for children. Partners for Kids has been committed to enrolling patients in research to improve care since its inception and currently is home to a PCORI award and an NIMH contract focused on quality improvement.
- Children's Hospital of PhiladelphiaFounded in 1855, CHOP is the nation’s oldest hospital dedicated solely to the care of children. The Main Hospital has 500 beds, 40 percent of which are allocated to intensive care with over 24,000 inpatient admissions per year. CHOP is the community hospital and primary care center for children in West and South Philadelphia, and a major tertiary referral center for the greater Delaware Valley area with an estimated population of 10 million. CHOP serves a diverse population of children that includes large numbers of racial and ethnic minorities, healthy newborns, infants, children and adolescents. CHOP provides primary care through its extensive network of 31 Primary Care Centers, which care for ~250,000 patients per year, located in Philadelphia, southern New Jersey, and northern Delaware. The CHOP primary care network is organized as a practice-based research network called PeRC, which receives institutional infrastructure support for recruitment into projects. Ten large Specialty Care Centers provide a comprehensive range of outpatient subspecialty services in locations throughout the metropolitan area. Overall, there are nearly 2 million patient visits made to CHOP by 400,000 unique patients. The CHOP Emergency Room manages >90,000 patient visits per year.