PEDSpace
Welcome to PEDSpace, a public data bank repository powered by PEDSnet. PEDSpace serves as a centralized hub where digital assets generated during PEDSnet studies are made readily accessible to researchers, clinicians, and stakeholders worldwide.
In PEDSpace, users can explore a wealth of resources to facilitate impactful research endeavors. Among these assets are meticulously defined variables, curated code sets, and modules for assessing data quality. Each component is designed to empower researchers with the tools necessary to navigate complex pediatric healthcare data effectively.
Photo by @inspiredimages
Collections in PEDSpace
Select a collection to browse its domains.
- Explore sets of medical codes used to represent a specified clinical concept.
- Browse a comprehensive set of functions to aid in data quality assessments of clinical datasets.
- Browse documentation, ETL specifications, and resources for participating PEDSnet sites.
- Learn about completed PEDSnet studies, their associated publications, and related research materials.
- Explore variables investigated by PEDSnet studies and their respective logic.
Recent Submissions
Community Informed Patient-Centered Research Prioritization for Patients with Tracheostomy and Chronic Ventilator Dependenc
Cincinnati Children's Hospital Medical Center
This project aims to identify priorities for research that will improve health outcomes for children with tracheostomy and chronic ventilator dependence. The projects identified will generate new evidence that can have immediate impact. This area of focus was based on network prioritization of pulmonary diseases for further investigation.
Therapeutic Use and Access in Pediatric Vitiligo
Seattle Children's Hospital
This study examines real-world prescribing practices for pediatric vitiligo, a psychologically impactful autoimmune skin condition marked by melanocyte loss and depigmentation. Despite consensus guidelines recommending first-line treatments such as topical corticosteroids, calcineurin inhibitors, and narrowband UVB phototherapy, access and utilization in children remain inconsistent and understudied. With emerging therapies like topical ruxolitinib now FDA-approved for adolescents, this research aims to assess potential undertreatment and barriers to care in the pediatric population.
Severity of Acute SARS-CoV-2 Infection and Risk of New-Onset Autoimmune Disease: A RECOVER Initiative Study in Nationwide U.S. Cohorts
New York University Grossman School of Medicine
This study aimed to investigate the association between SARS-CoV-2 infection and incident autoimmune diseases. The investigators examined COVID-19 severity and the risk of subsequently developing autoimmune disease among adults and children living across the U.S. within the Researching COVID-19 to Enhance Recovery (RECOVER) electronic health record (EHR) networks.
Turner Syndrome
(2024-07-10) Nemours Children's Health System
This phenotype was used to define a cohort of patients with Turner Syndrome (TS) for the "Investigating timing of diagnosis and equitable care in children with Turner syndrome" study run by Chijioke Ikomi. The cohort was used for analysis of diagnosis date by demographics, rurality, and pre/post changes in guidelines in 2017.
ADT service_concept_id Valueset
(2021-05-24) Children's Hospital of Philadelphia
This concept set reflects the controlled valueset for service_concept_id.