PEDSpace
Welcome to PEDSpace, a public data bank repository powered by PEDSnet. PEDSpace serves as a centralized hub where digital assets generated during PEDSnet studies are made readily accessible to researchers, clinicians, and stakeholders worldwide.
In PEDSpace, users can explore a wealth of resources to facilitate impactful research endeavors. Among these assets are meticulously defined variables, curated code sets, and modules for assessing data quality. Each component is designed to empower researchers with the tools necessary to navigate complex pediatric healthcare data effectively.
Photo by @inspiredimages
Collections in PEDSpace
Select a collection to browse its domains.
- Explore sets of medical codes used to represent a specified clinical concept.
- Browse a comprehensive set of functions to aid in data quality assessments of clinical datasets.
- Browse documentation, ETL specifications, and resources for participating PEDSnet sites.
- Learn about completed PEDSnet studies, their associated publications, and related research materials.
- Explore variables investigated by PEDSnet studies and their respective logic.
Recent Submissions
Chronic Kidney Disease (CKD) Etiology
(2025-02) Children's Hospital of Philadelphia; PEDSnet Data Coordinating Center
A function for identifying and categorizing chronic kidney disease (CKD) etiologies in a given cohort of patients.
Downloadable content for this Phenotype includes two R files (cohorts.R and driver.R) and a specs folder, which includes the related concept sets linked below.
Glomerular Disease
(2024-11) Children's Hospital of Philadelphia; PEDSnet Data Coordinating Center
A phenotype for identifying patients with glomerular disease based on diagnoses and kidney biopsy procedures.
Downloadable content for this Phenotype includes two R files (cohorts.R and driver.R) and a specs folder, which includes the required concept sets.
Malignancy
(2025-02) Children's Hospital of Philadelphia; PEDSnet Data Coordinating Center
A phenotype for identifying patients with malignancy based on cancer diagnoses and chemotherapy drug exposures.
Downloadable content for this Phenotype includes two R files (cohorts.R and driver.R) and a specs folder, which includes the related concept sets linked below.
Blood Pressure Z-Score
(2022-04) Children's Hospital of Philadelphia; PEDSnet Data Coordinating Center
A function for computing blood pressure z-scores in a given cohort of patients, which can be used to measure hypertension and blood pressure control.
Downloadable content for this Phenotype includes two R files (cohorts.R and driver.R) and a specs folder, which includes the required concept sets.
Estimated Glomerular Filtration Rate (eGFR)
(2024-01) Children's Hospital of Philadelphia; PEDSnet Data Coordinating Center
A function to derive the estimated glomerular filtration rate (eGFR) for a cohort of patients with existing serum creatinine and height measurements. eGFR values can be used to evaluate the presence and severity of chronic kidney disease (CKD) and other kidney related conditions.
Downloadable content for this Phenotype includes two R files (cohorts.R and driver.R) and a specs folder, which includes the related concept sets linked below.