Patient Facts Study Results Part III: SSDQA Comparison


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dc.contributor.authorWieand, Kaleigh
dc.contributor.otherPEDSnet Data Coordinating Center
dc.date.accessioned2025-12-19T16:56:10Z
dc.date.created2025-10
dc.description- There is high heterogeneity of median site fact density, especially in the lab-related domains. - Stanford has the lowest density of lab population associated with hematology specialists visits, which is an issue that will need to be investigated further. This visit-type specific issue is not observed as strongly in other domains, and other visit types do not seem to be as impacted by lab-related data quality issues. - CCHMC, also new to the cohort based on the updated attrition criteria, appears to fall in the middle of the pack in most domains and does not stick out as having any notable issues.
dc.description.abstractThe results of a Patient Facts check using the Multi-Site, Exploratory, Cross-Sectional parameters. This check investigates fact density across common domains, with a focus on key study variables like ANC MCV, & hemoglobin labs, and hydroxyurea.
dc.identifier.urihttps://hdl.handle.net/20.500.14642/1258
dc.identifier.urihttps://doi.org/10.24373/pdsp-600
dc.publisherPEDSnet
dc.rightsa CC-BY Attribution 4.0 license.
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectPerson-Level Analysis
dc.subjectCross-Sectional Analysis
dc.subjectMulti-Site Analysis
dc.subjectExploratory Analysis
dc.subject.meshAnemia, Sickle Cell
dc.subject.meshHematologic Tests
dc.titlePatient Facts Study Results Part III: SSDQA Comparison
dc.typestudy
dspace.entity.typeDQResult
local.admin.notev57
local.description.outcomesBased on these results, we will conduct further investigation to determine why Stanford is exhibiting such low fact density specifically for labs at hematology visits. Most other sites are behaving as expected, so no intervention will be required based on the rest of the results.
local.dqcheck.outcomesAdditional DQ Investigation
local.dqcheck.resultobsDisparate Site Behavior
local.subject.DataProvPEDSnet Data Source
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