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Funding
This research was made possible through the generous support of Patient-Centered Outcomes Research Institute. The statements presented in this work are solely the responsibility of the author(s) and do not necessarily represent the views of PCORI, its Board of Governors, or its Methodology Committee.
Creative Commons license
Except where otherwised noted, this item's license is described as a CC-BY 4.0 Attribution license.
Publisher
PEDSnet
Project Description
Healthy Weight Network is a group of pediatric weight management cinches at the eight children’s hospitals that comprise A National Pediatric Learning Health (PEDSnet) and 3 sites within Scalable Collaborative Infrastructure for a Learning Health.
Study Aims
- Demonstrate the viability of the clinic consortium to feasibly
- Survey a large portion of the patient population
- Demonstrate ability to link survey responses to the PEDSnet database of measures derived from patient EHR
- Use patient/parent-reported outcomes to learn about the health and well-being of these patients, including family involvement
- Understand how patients may want to be involved in future research
- Document willingness to be contracted for future research
- Describe the association between patient/parent-reported outcomes and EHR-derived measures of patient health burden and healthcare utilization