Healthy Weight Network Clinic Survey

Study Dates

2016-02 - 2018-02

Last Modified

Tags



Publisher

PEDSnet

Abstract

Study to describe the association between patient- and parent-reported outcomes and EHR-derived measures of obesity-related health burden and healthcare utilization.

Funder(s)

This research was made possible through the generous support of the Patient-Centered Outcomes Research Institute .

Provenance

Description

Healthy Weight Network is a group of pediatric weight management cinches at the eight children’s hospitals that comprise A National Pediatric Learning Health (PEDSnet) and 3 sites within Scalable Collaborative Infrastructure for a Learning Health.

Study Aims

  1. Demonstrate the viability of the clinic consortium to feasibly
  2. Survey a large portion of the patient population
  3. Demonstrate ability to link survey responses to the PEDSnet database of measures derived from patient EHR
  4. Use patient/parent-reported outcomes to learn about the health and well-being of these patients, including family involvement
  5. Understand how patients may want to be involved in future research
  6. Document willingness to be contracted for future research
  7. Describe the association between patient/parent-reported outcomes and EHR-derived measures of patient health burden and healthcare utilization

Cohort Description

Patients (age 12 to 18) and caregivers (of patients ages 5 to 18) who participated in a Healthy Weight Clinic. These pediatric weight management clinics operate at eight PEDSnet and three Scalable Collaborative Infrastructure for a Learning Health (SCILHS) sites.

Development Code

Vocabulary

Related Concept Set

Acquired Acanthosis Nigricans
(2018-05-08) Children's Hospital of Philadelphia
This concept set is inteded to identify patients with a diagnosis of acquired Acanthosis Nigricans.
Anti-Diabetic Agents, Intravenous
(2018-04-16) Children's Hospital of Philadelphia
Concept set intended to identify patients with an exposure to an intravenous anti-diabetic agent.
Anti-Diabetic Agents, Oral
(2018-04-16) Children's Hospital of Philadelphia
Concept set intended to identify patients with an exposure to an oral anti-diabetic agent.
Anti-Reflux Medications
(2018-04-16) Children's Hospital of Philadelphia
Concept set intended to identify patients with an exposure to an anti-reflux medication.
Anxiety
(2018-04-16) Children's Hospital of Philadelphia
This concept set is inteded to identify patients with a diagnosis of anxiety.

Related Person

Related Data Quality Result

Related Person

Related Phenotype

Related Study

Related Publications

Manuscript Pending.

Creative Commons license

Except where otherwised noted, this item's license is described as a CC-BY 4.0 Attribution license.