Congenital Heart Initiatives: Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON) Study


Study Dates

2021

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Abstract

Study to see how often adults with congenital heart defects (CHD) receive recommended care from a heart doctor.

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Louisiana Public Health Institute

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This research was made possible through the generous support of Patient-Centered Outcomes Research Institute. The statements presented in this work are solely the responsibility of the author(s) and do not necessarily represent the views of PCORI, its Board of Governors, or its Methodology Committee.

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Congenital heart defects, or CHDs, are the most common type of birth defect. CHDs can be noncomplex or complex. Examples of noncomplex CHDs include an issue with one heart valve or a hole in the heart. Complex CHDs may affect several parts of the heart or the way the blood circulates. Nearly 150,000 adults in the United States have a complex CHD.

Guidelines from the American Heart Association and the American College of Cardiology recommend that patients with complex CHDs see a heart doctor every one to two years. But many patients don’t see a heart doctor until they have serious health problems.

In this study, the research team is looking to see how often adults with CHDs receive recommended care from a heart doctor. The team also wants to learn how outcomes differ when patients do or do not receive recommended care from a heart doctor.

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a CC-BY 4.0 Attribution license.
Except where otherwised noted, this item's license is described as a CC-BY 4.0 Attribution license.

Cite this Study

Carton, T. Congenital Heart Initiatives: Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON) Study. [Study]. PEDSpace Knowledge Bank. https://hdl.handle.net/20.500.14642/839

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