Congenital Heart Initiatives: Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON) Study


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dc.contributorPatient-Centered Outcomes Research Institute
dc.contributor.authorCarton, Thomas
dc.contributor.otherLouisiana Public Health Institute
dc.date.accessioned2024-10-25T21:12:00Z
dc.descriptionCongenital heart defects, or CHDs, are the most common type of birth defect. CHDs can be noncomplex or complex. Examples of noncomplex CHDs include an issue with one heart valve or a hole in the heart. Complex CHDs may affect several parts of the heart or the way the blood circulates. Nearly 150,000 adults in the United States have a complex CHD. Guidelines from the American Heart Association and the American College of Cardiology recommend that patients with complex CHDs see a heart doctor every one to two years. But many patients don’t see a heart doctor until they have serious health problems. In this study, the research team is looking to see how often adults with CHDs receive recommended care from a heart doctor. The team also wants to learn how outcomes differ when patients do or do not receive recommended care from a heart doctor.
dc.description.abstractStudy to see how often adults with congenital heart defects (CHD) receive recommended care from a heart doctor.
dc.identifier.urihttps://hdl.handle.net/20.500.14642/839
dc.publisherPEDSnet
dc.rightsa CC-BY 4.0 Attribution license.
dc.rights.urihttps://creativecommons.org/licenses/by-sa/4.0/
dc.subjectPEDSnet Data Source
dc.subjectPCORI Funded Research
dc.subject.meshHeart Defects, Congenital
dc.subject.meshCardiovascular Abnormalities
dc.subject.meshHeart Diseases
dc.subject.meshCardiovascular Diseases
dc.subject.meshCongenital, Hereditary, and Neonatal Diseases and Abnormalities
dc.titleCongenital Heart Initiatives: Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON) Study
dspace.entity.typeStudy
project.startDate2021

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