Pediatric Glomerular Disease Learning Network

Simple item page
dc.contributor.authorSoranno, Danielle
dc.contributor.authorZaritsky, Joshua
dc.contributor.authorMitsnefes, Mark
dc.contributor.authorHooper, David
dc.contributor.authorSomers, Michael
dc.contributor.authorDharnidharka, Vikas
dc.contributor.authorSmoyer, William
dc.contributor.authorFlynn Joseph
dc.contributor.otherChildren's Hospital Colorado
dc.contributor.otherNemours Children's Health System
dc.contributor.otherCincinnati Children's Hospital Medical Center
dc.contributor.otherNational Children's Hospital
dc.contributor.otherSt. Louis Children's Hospital
dc.contributor.otherSeattle Children's Hospital
dc.date.accessioned2024-10-25T21:12:00Z
dc.descriptionStudy to create a sustainable and expandable Pediatric Glomerular Disease Learning Network to address fundamental limitations of current observational cohorts and registries and focus on practice pattern variation, observational outcomes and comparative effectiveness research, and ultimately pragmatic clinical trials. #### Study Aims 1. To develop and validate a computable phenotype for the identification of glomerular disease in PEDSnet. 2. To establish a collaborative of nephrologists from the 8 participating institutions committed to the creation and maintenance of a Pediatric Glomerular Disease Learning Network. 3. To promote the standardization of data collected in the course of clinical care. #### Study Design This study is an observational, cross-sectional analysis using previously collected data.
dc.description.abstractStudy to create a sustainable and expandable Pediatric Glomerular Disease Learning Network to address fundamental limitations of current observational cohorts and registries and focus on practice pattern variation, observational outcomes and comparative effectiveness research, and ultimately pragmatic clinical trials.
dc.identifier.urihttps://pedsnet.org/metadata/handle/20.500.14642/832
dc.publisherPEDSnet
dc.rightsa CC-BY 4.0 Attribution license.
dc.rights.urihttps://creativecommons.org/licenses/by-sa/4.0/
dc.subject.meshData Aggregation
dc.subject.meshGlomerulonephritis
dc.subject.meshUrological Diseases
dc.subject.meshNephritis
dc.subject.meshNephrology
dc.subject.meshHealth Services Research
dc.titlePediatric Glomerular Disease Learning Network
dspace.entity.typeStudy
local.subject.flatPEDSnet Data Source
project.startDate2018
relation.isOrgUnitOfStudy9a70cd88-d272-4a2a-82b2-7b4a1422f809
relation.isOrgUnitOfStudy097b646c-d7bd-47f5-a4db-e7b0881e2ad6
relation.isOrgUnitOfStudy50ee736e-2446-4251-bb74-8cb2b0e6f54d
relation.isOrgUnitOfStudy30099c48-73a0-4702-b902-90e18dd95b36
relation.isOrgUnitOfStudy.latestForDiscovery9a70cd88-d272-4a2a-82b2-7b4a1422f809

Files

Domains

PEDSnet Designated Studies