Pediatric Glomerular Disease Learning Network

Study Dates

2018

Last Modified

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Publisher

PEDSnet

Abstract

Study to create a sustainable and expandable Pediatric Glomerular Disease Learning Network to address fundamental limitations of current observational cohorts and registries and focus on practice pattern variation, observational outcomes and comparative effectiveness research, and ultimately pragmatic clinical trials.

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Description

Study to create a sustainable and expandable Pediatric Glomerular Disease Learning Network to address fundamental limitations of current observational cohorts and registries and focus on practice pattern variation, observational outcomes and comparative effectiveness research, and ultimately pragmatic clinical trials.

Study Aims

  1. To develop and validate a computable phenotype for the identification of glomerular disease in PEDSnet.
  2. To establish a collaborative of nephrologists from the 8 participating institutions committed to the creation and maintenance of a Pediatric Glomerular Disease Learning Network.
  3. To promote the standardization of data collected in the course of clinical care.

Study Design

This study is an observational, cross-sectional analysis using previously collected data.

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Creative Commons license

Except where otherwised noted, this item's license is described as a CC-BY 4.0 Attribution license.