Vision Screening in Young Children with Autism

Study Dates

2023

Last Modified

Loading...
Thumbnail Image

Tags

Publisher

PEDSnet

Abstract

Study to examine rates of vision screening in primary care for young children with autism spectrum disorder.

Funder(s)

This research was made possible through the generous support of the Nemours Division of General Academic Pediatrics .

Provenance

Description

Children with Autism Spectrum Disorder (ASD) have greater unmet healthcare needs compared with typically developing peers, including delays in seeking medical care, inadequate insurance coverage, and inability to access necessary therapy services. Many children with ASD do not receive recommended vision care. Based on an analysis of the National Survey of Children’s Health data from 2011 to 2012, ∼80% of children with ASD had a vision screening. Only 9% of children less than 5 years old with ASD had a screening at their pediatrician’s office, and there were low referral rates to eye care specialists when screening was performed.

The research team previously used Nemours’ PEDSnet database to study rates of vision screening in primary care for young children with autism. They used vision screening (visual acuity and instrument-based) billing codes as a proxy for the completion of vision screening in primary care. They examined the effects of age, gender, race, ethnicity, insurance, and practice location on vision screening. This study replicates the previous study using multicenter data.

Study Aims

  1. Determine the rate of total vision screening in young autistic children compared to control
  2. Determine the rate of visual acuity screening in young autistic children compared to control
  3. Determine the rate instrument-based vision screening in young autistic children compared to control
  4. Complete an analysis of vision screening for different demographic data

Development Code

Vocabulary

Clinical Subjects Headings

Related Concept Set

Eye and Vision Conditions
(2023-12-06) Nemours Children's Health
This concept set was developed to identify any eye- or vision-affecting condition, ranging from minor and temporary to serious, for exclusion in a study involving vision exams.
Autism Diagnoses
(2023-12-06) Nemours Children's Health
This concept set was developed to identify autism diagnoses to identify patients to define a study cohort

Related Person

Related Data Quality Result

Related Person

Related Phenotype

Vision Screening in Children With and Without Autism
(2023-12-06) Nemours Children's Health
Phenotype for identifying young children receiving vision screenings at wellness visits and comparing an autistic and non-autistic cohort.

Related Study

Related Code

Related Publications

Hoover K, Di Guglielmo MD, Perry B. April 2023. “Disparities in Vision Screening in Primary Care for Young Children With Autism Spectrum Disorder.” Pediatrics. 1;151(4):e2022059998.
DOI: 10.1542/peds.2022-059998

Creative Commons license

Except where otherwised noted, this item's license is described as a CC-BY 4.0 Attribution license.