ConceptSet

Opthalmology, Providers and Care Sites


Variable Name

vis_ophthamology-cs-prov

Refreshed Date

2021-02

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Provenance

A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)

Description

This concept set contains provider and care site specialties for nephrology. This concept set was previously developed for other PEDSnet studies by searching for terms related to nephrology. This concept set was not reviewed by a clinician for this particular study, but it has been used in a multitude of other nephrology focused PEDSnet studies including PRESERVE, HSP, P50 clinical insights and ARPKD. It was developed to assess the frequency with which patients with primary hyperoxaluria (PH) were seeking care with specialties involved in patient care for and related to PH. This concept set contains NUCC, HES Specialty, ABMS, and Medicare Specialty vocabularies. Some of the vocabularies in the concept set are not utilized in the PEDSnet CDM to describe provider specialty, but could potentially be present in other networks for distributed queries.

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Study Variable Applications

A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2)
Study Dates:2020-09 - 2021-06Sponsor Site:Children's Hospital of Philadelphia
This study was intended to generate new knowledge about the impact of Primary Hyperoxaluria (PH) on kidney function and characterize the clinical course for children with PH.

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Creative Commons license

Except where otherwised noted, this item's license is described as a CC-BY Attribution 4.0 License.