PEDSnet’s guiding purpose is to improve child health through knowledge production that is efficient (produced faster at less cost) and meaningful (useful to patients, caregivers, clinicians, and health system leaders). Led by the Children’s Hospital of Philadelphia (CHOP), PEDSnet is the only PCORnet Clinical Research Network (CRN) focused exclusively on improving child health and pediatric […]
Structured clinical data, typically derived from claims or electronic health records (EHR), most closely reflects operational activity, in particular activity that is reimbursable or expends health system resources. These data record actions and results, often in granular detail, but provide limited information about attribution, and may not accurately reflect medical reasoning. Narrative clinical notes are […]
PEDSnet’s guiding purpose is to improve child health through knowledge production that is efficient (produced faster at less cost) and meaningful (useful to patients, caregivers, clinicians, and health system leaders). Led by the Children’s Hospital of Philadelphia (CHOP), PEDSnet is the only PCORnet® Clinical Research Network (CRN) focused exclusively on improving child health and pediatric […]
To address missed gaps in data quality, the purpose of this study is to create actionable guidelines for testing and reporting data quality, building on current practice and expanding it to address fitness for use and alignment with clinical meaning. Aim 1: Define specific guidelines for testing that allow users to assess the fitness of […]
Diabetes mellitus is a group of disorders characterized by hyperglycemia resulting from defects in insulin production, insulin action, or both. In children and adolescents 0-17 years-old, pediatric diabetes mellitus (PDM) is one of the more common chronic diseases. Mounting evidence suggests that rates of both Type 1 and 2 diabetes mellitus in children and adolescents […]