The purpose of this study is to create and validate a computable phenotype for patient cohorts at risk for unnecessary transfusion and to deploy and evaluate the implementation of computerized decision support tools designed to enhance compliance with blood transfusion guidelines for PICU patients. Development of the computable phenotype and implementation/evaluation of the CCDS tools […]
Children with Autism Spectrum Disorder (ASD) have greater unmet healthcare needs compared with typically developing peers, including delays in seeking medical care, inadequate insurance coverage, and inability to access necessary therapy services. Many children with ASD do not receive recommended vision care. Based on an analysis of the National Survey of Children’s Health data from […]
This study aims to improve the nutritional outcomes of infants with orofacial clefts, who face higher risks of malnutrition and growth faltering. A review of 833 infants treated at Seattle Children’s Hospital (2010-2020) showed that underweight rates were significantly higher in infants with clefts compared to the general population, peaking at 27.1% between 2-3 months […]
This study aims to improve the nutritional outcomes of infants with orofacial clefts, who face higher risks of malnutrition and growth faltering. A review of 833 infants treated at Seattle Children’s Hospital (2010-2020) showed that underweight rates were significantly higher in infants with clefts compared to the general population, peaking at 27.1% between 2-3 months […]
Research shows that Autism Spectrum Disorder (ASD) and gender dysphoria co-occur more often than by chance. Recent studies suggest that the incidence of ASD is nearly six times higher among youth referred to gender clinics, and the incidence of gender concerns are over seven times higher among youth with ASD, compared to their respective prevalence […]
Nephrotic syndrome (NS) is a leading cause of acquired end-stage kidney disease (ESKD) in children. The incidence of NS is approximately 2-5 per 100,000 children and its pathogenesis is not fully understood. Children with NS are classified based on: 1) Treatment (steroid) response 2) Renal biopsy and/or 3) Genetic mutation. However, the correlation among these […]
Cancer afflicts approximately 15,000 children annually in the United States. In recent years, drug shortages for sterile injectable chemotherapies have occurred in the United States. This study seeks to estimate the amount of sterile chemotherapy used each year in the United States by pediatric cancer patients. This estimate will inform a cost analysis which will […]