Our aim is to implement and test electronic measures of outpatient pediatric healthcare quality and safety using the PCORI Common Data Model.The PCORnet Common Data Model is a way of organizing data, including data mined directly from the electronic health record, into a standard structure. This research will take place in two PCORI funded networks which use the PCORI Common Data Model: PEDSnet and OneFlorida. This will be the first study to use the PEDSnet and OneFlorida data, and will include analysis of the data pulled directly from the electronic health record for over 5 million children, and validation of this data using a manual review of a sample of approximately 500 charts. We will test the creation of a benchmarking report so health systems can compare their performance to others. Without this information, hospitals do not know if they have the best quality care or the worst, and cannot learn from each other, which limits improvement. We will focus on 3 well-established measures of quality: (1) transcranial Doppler screening for children with sickle cell disease; (2) appropriate antibiotics for ear infections; and (3) cholesterol and glucose testing for children on antipsychotic medications. Only 30% of children with sickle cell disease receive transcranial Doppler screening, which identifies high risk for stroke and initiates treatments that reduce risk by 92%. Only 70% of children with ear infections receive the appropriate antibiotics. Over 600,000 children take antipsychotic medications which greatly increase the risk for diabetes and high cholesterol; only 19% of these receive glucose and cholesterol tests.
Automating Quality and Safety Benchmarking for Children: Meeting the Needs of Health Systems and Patients
Clinical Outcomes by Language of Care in Pediatric Oncology
Although language disparities in outcomes are well documented in general pediatrics and adult oncology, little is known in pediatric oncology. Patient or family language is not included in many multi- institutional databases and patient registries, limiting studies of language-based inequities…
Extreme weather impacts on children’s acute and chronic health outcomes; a multisite study with evaluation of vulnerabilities
The “Extreme Weather and Pediatric Health Outcomes” study investigates the impact of climate change-related extreme weather events, such as extreme heat and heavy rainfall, on children’s health across the United States. This innovative research aims to address critical knowledge gaps…
Characterization of Babies Born with Hemolytic Disease of the Fetus/Newborn (HDFN)
Hemolytic disease of the fetus and newborn (HDFN) otherwise known as erythroblastosis fetalis, is a disease in which fetal and neonatal erythrocytes are destroyed by maternal IgG alloantibodies. Before the first RhD immunoprophylaxis was introduced as a treatment in 1968,…