Patient Facts Study Results I: PRESERVE


Created

2025-04-08
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Findings

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Domain

Publisher

PEDSnet

Abstract

The results of a Patient Facts check using the Single Site, Exploratory, Cross-Sectional parameters. This check evaluates overall utilization at inpatient, ED, outpatient, and outpatient nephrology visits across the patient follow-up period.

Affiliation(s)

PEDSnet Data Coordinating Center

Funder(s)

Provenance

This data quality check was run on a database extracted from the The Preserving Kidney Function in Children With CKD (PRESERVE) Study. These results were not used for the study, but rather run on the study data after analysis was conducted as part of an SSQDA demonstration project.

Description

  • When including patients who do not have a fact, the median number of facts across domains is very, very low for ED and inpatient visits. This indicates that many patients in the cohort were likely not seen in an ED or inpatient setting, and that they are primarily seen in outpatient settings.
  • When limiting to patients who have evidence of at least one fact, patients have a high number of procedures per year of follow up across visit types, with diagnoses trending higher in outpatient and outpatient nephrology visits.
  • In the inpatient setting, there is a slight misalignment between the median number of systolic versus diastolic blood pressure measurements, which we would expect to be the same. This will require further investigation.

Response to Findings

Study team did not conduct further investigation or data intervention in response to these results because this was a demonstration project intended to highlight the functionality of the SQUBA tool.

Clinical Subjects Headings

Development Code

Vocabulary

Related Data Quality Results

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Patient Facts Study Results II: PRESERVE
Created:2025-04-08Affiliation:PEDSnet Data Coordinating Center
The results of a Patient Facts check using the Multi-Site, Exploratory, Cross-Sectional parameters. This check evaluates utilization at inpatient, ED, outpatient, and outpatient nephrology visits across the patient follow-up period at each institution.
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Patient Facts Study Results III: PRESERVE
Created:2025-04-08Affiliation:PEDSnet Data Coordinating Center
The results of a Patient Facts check using the Multi-Site, Anomaly Detection, Cross-Sectional parameters. This check evaluates anomalous utilization at inpatient, ED, outpatient, and outpatient nephrology visits across the patient follow-up period at each institution.

Data Source

Institutions

Related Data Quality Check

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Patient-Facts: Single Site, Exploratory, Cross-Sectional Analysis
Created:2024-06-05Affiliation:PEDSnet Data Coordinating Center
This check assesses how much clinical data is available for patients. It provides a screen shot of clinical data for a single site.

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Creative Commons license

a CC-BY Attribution 4.0 License.
Except where otherwised noted, this item's license is described as a CC-BY Attribution 4.0 License.

Cite this Data Quality Result

Wieand, K. (2025, April). Patient Facts Study Results I: PRESERVE. [D Q Result]. PEDSpace Knowledge Bank. https://doi.org/10.24373/pdsp-667