Patient Facts Study Results I: PRESERVE


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dc.contributor.authorWieand,Kaleigh
dc.contributor.otherPEDSnet Data Coordinating Center
dc.date.accessioned2026-04-21T19:36:02Z
dc.date.created2025-04-08
dc.description- When including patients who do not have a fact, the median number of facts across domains is very, very low for ED and inpatient visits. This indicates that many patients in the cohort were likely not seen in an ED or inpatient setting, and that they are primarily seen in outpatient settings. - When limiting to patients who have evidence of at least one fact, patients have a high number of procedures per year of follow up across visit types, with diagnoses trending higher in outpatient and outpatient nephrology visits. - In the inpatient setting, there is a slight misalignment between the median number of systolic versus diastolic blood pressure measurements, which we would expect to be the same. This will require further investigation.
dc.description.abstractThe results of a Patient Facts check using the Single Site, Exploratory, Cross-Sectional parameters. This check evaluates overall utilization at inpatient, ED, outpatient, and outpatient nephrology visits across the patient follow-up period.
dc.identifier.urihttps://hdl.handle.net/20.500.14642/1620
dc.identifier.urihttps://doi.org/10.24373/pdsp-667
dc.provenanceThis data quality check was run on a database extracted from the The Preserving Kidney Function in Children With CKD (PRESERVE) Study. These results were not used for the study, but rather run on the study data after analysis was conducted as part of an SSQDA demonstration project.
dc.publisherPEDSnet
dc.rightsa CC-BY Attribution 4.0 License.
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectCross-Sectional Analysis
dc.subjectSingle-Site Analysis
dc.subjectExploratory Analysis
dc.subject.meshRenal Insufficiency, Chronic
dc.subject.meshUrogenital Diseases
dc.subject.meshEmergency Room Visits
dc.subject.meshAmbulatory Care
dc.subject.meshHospitalization
dc.titlePatient Facts Study Results I: PRESERVE
dc.typestudy
dspace.entity.typeDQResult
local.admin.notePRESERVE database
local.description.outcomesStudy team did not conduct further investigation or data intervention in response to these results because this was a demonstration project intended to highlight the functionality of the SQUBA tool.
local.dqcheck.outcomesNo Interventions
local.dqcheck.resultobsExpected Output
local.subject.DataModelPCORnet Data Model
local.subject.DataProvPCORnet Data Source
relation.isDQCheckOfDQResult6cfbe36e-7e7c-4822-94b0-40aef2a017c6
relation.isDQCheckOfDQResult.latestForDiscovery6cfbe36e-7e7c-4822-94b0-40aef2a017c6
relation.isDQResultOfDQResultfdab4118-ae13-4eaf-9786-da03c65b0d0f
relation.isDQResultOfDQResult1cfb5127-55eb-4531-bf73-68c0c6f37dc8
relation.isDQResultOfDQResult.latestForDiscovery1cfb5127-55eb-4531-bf73-68c0c6f37dc8

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