Cohort Attrition Study Results Part IV: SSDQA Comparison


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2026-01-30
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Findings


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PEDSnet

Abstract

The results of a Cohort Attrition check using the Multi-Site, Exploratory, Cross-Sectional parameters. This check evaluates patient retention at each step of the attrition, after an additional attrition step was added requiring 2 or more Sickle Cell Anemia (SCA) diagnoses for each patient.

Affiliation(s)

PEDSnet Data Coordinating Center

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Provenance

Description

  • An additional attrition criteria requiring patients to have 2 or more SCA diagnoses was added as a proxy for lab confirmed diagnoses. Lab-confirmed diagnoses were not evaluated due to separate data quality issues with lab result values.
  • Most sites did not experience significant patient loss, but Nationwide lost a significant number of patients after this criteria was applied.
  • Subsequent analyses revealed this significantly improved covariate population in the cohort and addressed other DQ concerns, so we found this was a positive result.

Response to Findings

We decided to move forward with this updated attrition, but we will conduct additional DQ analyses to make sure covariates are still populated as expected in this updated cohort.

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Data Source

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PEDSnet Production Database (2025-04)
Created:2025-04Affiliation:PEDSnet Data Coordinating Center
PEDSnet production database containing de-identified aggregate electronic healthcare information for ten contributing pediatric healthcare institutions. This database corresponds to Version 5.7 of the PEDSnet data model.

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Institutions

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Nationwide Children's Hospital
Nationwide Children’s Hospital (NCH) is a 508-bed hospital with over 18,000 admissions and 1.2 million outpatient visits annually. It also performs nearly 10,000 inpatient and over 17,000 outpatient surgeries annually. Care is provided at 62 sites largely concentrated in central Ohio. NCH operates 15 wholly owned primary care sites that serve 75,000 unique children and adolescents as their medical home. In addition, NCH operates Urgent Care Centers and one of the largest ED’s in the US totaling 250,000 visits per year. NCH also operates the largest pediatric outpatient service at a children’s hospital in the US with more than 180,000 visits per year. All of these sites have been used for research enrollment as have others. NCH’s ChildLab is the largest provider of pediatric labs in the state and operates at numerous sites both in central Ohio and southern and eastern parts of the state. ChildLab has partnered on other research studies. Finally, NCH is also home to Partners for Kids, the largest and oldest pediatric Accountable Care Organization in the US exclusively for children. Partners for Kids has been committed to enrolling patients in research to improve care since its inception and currently is home to a PCORI award and an NIMH contract focused on quality improvement.
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Children's Hospital Colorado
Children’s Hospital Colorado (Children’s Colorado) has defined and delivered pediatric health care excellence for more than 100 years. Founded in 1908, Children’s Colorado is a leading pediatric network entirely devoted to the health and well-being of children. Continually acknowledged as one of the nation’s outstanding pediatric hospitals by U.S. News & World Report and ranked 5th on its Best Children’s Hospitals 2015-16 Honor Roll, Children’s Colorado is known for both its nationally and internationally recognized medical, research, education and advocacy programs, as well as comprehensive everyday care for kids throughout Colorado and surrounding states. Children’s Colorado is the winner of the 2015 American Hospital Association-McKesson Quest for Quality Prize, and is a 2015 Most Wired hospital according to Hospitals & Health Networks magazine. Children’s Colorado also is recognized for excellence in nursing from the American Nurses Credentialing Centers and has been designated a Magnet® hospital since 2005. The hospital’s family-centered, collaborative approach combines the nation’s top pediatric doctors, nurses and researchers to pioneer new approaches to pediatric medicine. With urgent, emergency and specialty care locations throughout Metro Denver and Southern Colorado, including its campus on the Anschutz Medical Campus, Children’s Colorado provides a full spectrum of pediatric specialties.
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Seattle Children's Hospital
Seattle Children’s mission is to provide hope, care and cures to help every child live the healthiest and most fulfilling life possible. Together, Seattle Children’s Hospital, Research Institute and Foundation deliver superior patient care, identify new discoveries and treatments through pediatric research, and raise funds to create better futures for patients. Ranked as one of the top children’s hospitals in the country by U.S. News & World Report, Seattle Children’s serves as the pediatric and adolescent academic medical center for Washington, Alaska, Montana and Idaho – the largest region of any children’s hospital in the country. As one of the nation’s top five pediatric research centers, Seattle Children’s Research Institute is internationally recognized for its work in neurosciences, immunology, cancer, infectious disease, injury prevention and much more. Seattle Children’s Foundation, along with Seattle Children’s Guild Association – the largest all-volunteer fundraising network for any hospital in the country – works with our generous community to raise funds for lifesaving care and research. Learn more about Seattle Children's Hospital metrics from their annual [Facts and Stats](https://www.seattlechildrens.org/globalassets/documents/about/facts-and-stats/facts-and-stats-2025.pdf) resource.
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Children's National Hospital
Serving the nation’s children for more than 150 years, Children’s National Hospital has been an innovator in pediatric health care around the nation and around the world. Children’s National was one of the nation’s first children’s hospitals, opening in 1870 and growing from a modest 12-bed facility to a 323-bed facility that performs more than 17,000 surgeries and conducts more than 669,000 outpatient visits in more than 60 specialties each year. Formerly referred to as D.C. Children’s Hospital, Children’s National is the only exclusive provider of pediatric care in the Washington, D.C., metropolitan area. Today, the health system includes primary care health centers, regional outpatient centers, and affiliated pediatric primary and specialty care practices throughout the metropolitan area, in addition to providing tertiary care in our main hospital.
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Ann & Robert H. Lurie Children's Hospital of Chicago
Lurie Children's works to provide the best possible care for patients and their families. More than 239,000 children receive the highest-quality medical care at Lurie Children’s each year. Lurie Children’s treats more children insured by Medicaid than any other hospital in Illinois.

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Related Publications

Creative Commons license

a CC-BY Attribution 4.0 license.
Except where otherwised noted, this item's license is described as a CC-BY Attribution 4.0 license.

Cite this Data Quality Result

Wieand, K. (2026, January). Cohort Attrition Study Results Part IV: SSDQA Comparison. [D Q Result]. PEDSpace Knowledge Bank. https://doi.org/10.24373/pdsp-503.4

Version History

Now showing 1 - 2 of 2
VersionDateSummary
4*
 2026-02-25 14:29:03
Fourth round of cohort attrition conducted after after an additional attrition step was added requiring 2 or more Sickle Cell Anemia (SCA) diagnoses for each patient.
3
 2025-12-19 11:47:51
Third round of cohort attrition conducted after adjustments were made to the attrition criteria to remove the need for parsing lab result values.
* Selected version