This page has some common access issues that PEDSnet external collaborators run into. Please read through to see if any of these suggestions can help solve your issue. If you still run into problems after referencing this guide, you can fill out this REDCap survey, and someone from the PEDSnet Coordinating Center will be in […]
FYREworks – Family, Youth, Researchers Education FYREworks (Family/Youth/Researcher Education) is a set of interactive, web-based trainings and toolkits designed to help youth and researchers create research partnerships and conduct patient-centered outcomes research together. FYREworks was created by Katherine Bevans, PhD in collaboration with the PEDSnet Youth Advisory Council. FYREworks Training(opens in new tab) Connect with […]
U.S. State and County Data Report for PCORnet® – FD1967 PCORnet® Table 1 Query January 14, 2025 PCORnet® Newsletter – September 2024 September 1, 2024 CHOP-led clinical research network leverages big data with a family-friendly approach August 6, 2024 PCORnet® Newsletter – May 2024 May 1, 2024 Kids’ Long COVID Diminished by COVID-19 Vaccine January […]
Next Scholar Appointment: FALL 2026 PEDSnet Scholars: A Learning Health System Embedded Scientist Training and Research (LHS E-STaR) Center (P30) The PEDSnet Scholars Program is an Agency for Healthcare Research and Quality (AHRQ) and the Patient-Centered Outcomes Research Institute (PCORI) funded Learning Health System Embedded Scientist Training and Research (LHS E-STaR) Center (P30) designed to support the […]
PEDSnet is PCORnet® Clinical Research Network (CRN). The PCORnet solution offers access to real-world data. PCORnet® Network Partners can help users conduct research more efficiently. PEDSnet submits data to the PCORnet secure infrastructure that offers researchers a simple process for querying the accessible data and deriving efficient insights. For the data to be useful it […]
The PEDSnet Governance Policies are the foundation of the network. They guide our members and leadership by providing a framework of processes for all the different areas of work conducted within the network. This includes decision making, submissions, data quality assessments, research study approvals, patient and stakeholder engagement. It also provides information pertaining to PEDSnet’s […]
Institutional Review Board (IRB) With the collaboration of IRB leaders across its eight founding institutions, PEDSnet has made significant progress in developing regulatory policies and tools to facilitate research across the network. All PEDSnet institutions endorse the PEDSnet Single Institutional Review Board (IRB) Policy which aims to establish a single IRB framework for multi-institutional research […]
PEDSnet Data Patient Populations Data Domains Data Quality PEDSpace Knowledge Bank(opens in new tab) Variable Dictionary PEDSnet Common Data Model Security and Privacy Access to Data The PEDSnet data network takes multiple steps to limit privacy risks and protect patient and family data. PEDSnet has a number of security and privacy measures in place to […]
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Addison Helon Engagement Core Nationwide Children’s Hospital Alan Schroeder, MD Principal Investigator Stanford Children’s Health Alex Shorrock Data Pipeline Children’s Hospital of PhiladelphiaCoordinating Center Alexander J. Kula, MD Co-Investigator Ann & Robert H. Lurie Children’s Hospital of Chicago Aliyah Jones Project Management Children’s Hospital of PhiladelphiaCoordinating Center Alka Chandel Data Analytics Cincinnati Children’s Hospital Medical […]