Chronic Diseases

Publication Category: Chronic Diseases

Hypertension, proteinuria, and RAAS inhibition use in children with systemic lupus erythematosus: data from a multi-institutional pediatric learning health system

Chang JC, Atkinson MA, Davies AG, Maltenfort M, Luna IY, Razzaghi H, Dharnidharka VR, Flynn JT, Smoyer WE, Mitsnefes MM, Dixon BP, Gluck CA, Scobell R, Bailey LC, Furth SL, Forrest CB, Denburg MR, Wenderfer SE. Hypertension, proteinuria, and RAAS inhibition use in children with systemic lupus erythematosus: Data from a multi-institutional pediatric learning health […]

Using A Multi-Institutional Pediatric Learning Health System to Identify Patients with Systemic Lupus Erythematosus and Lupus Nephritis

Wenderfer SE, Chang JC, Goodwin Davies A, Luna IY, Scobell R, Sears C, Magella B, Mitsnefes M, Stotter BR, Dharnidharka VR, Nowicki KD, Dixon BP, Kelton M, Flynn JT, Gluck C, Kallash M, Smoyer WE, Knight A, Sule S, Razzaghi H, Bailey LC, Furth SL, Forrest CB, Denburg MR, Atkinson MA. Using a Multi-Institutional Pediatric […]

Leveraging the PEDSnet clinical research network and electronic health record data to enhance efficiency of trial enrollment for a rare pediatric rheumatic disease

Title: Finding Kids With Rare Arthritis Using the PEDSnet Network Key Words: PEDSnet, juvenile spondyloarthritis, rheumatology, rare diseases, clinical trials This study looked at how well the PEDSnet network can help doctors find children with juvenile spondyloarthritis, a rare type of arthritis. Researchers used electronic health records from eight children’s hospitals to identify kids with different […]

Transforming the nutrition care model for infants with cystic fibrosis: A qualitative study of clinicians’ perspectives

Ong T, Bell S, Britto MT, Gamel B, McNamara S, Ramsey B, Barton KS. Transforming the nutrition care model for infants with cystic fibrosis: A qualitative study of clinicians’ perspectives. Pediatr Pulmonol. 2023 Jan 25. doi: 10.1002/ppul.26330. Epub ahead of print. PMID: 36695543.

Standardizing electronic health record ventilation data in the pediatric long-term mechanical ventilator-dependent population

Kanbar LJ, Dexheimer JW, Zahner J, Burrows EK, Chatburn R, Messinger A, Baker CD, Schuler CL, Benscoter D, Amin R, Pajor N. Standardizing electronic health record ventilation data in the pediatric long-term mechanical ventilator-dependent population. Pediatr Pulmonol. 2023 Feb;58(2):433-440. doi: 10.1002/ppul.26204. Epub 2022 Oct 20. PMID: 36226360

Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic: a success QI story for interdisciplinary care and agenda setting

Albon D, Thomas L, Hoberg L, Stamper S, Somerville L, Varghese P, Balasa E, Roman M, Britto MT, Miner M, Gehring E, Gammon C, Amin RS, Seid M, Powers M; CF Learning Network telehealth iLab working group. Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic: a success QI story for interdisciplinary care […]

Impact of guideline-recommended dietitian assessments on weight gain in infants with cystic fibrosis.

Ong T, Onchiri FM, Britto MT, Heltshe SL, Kessler LG, Seid M, Ramsey BW. Impact of guideline-recommended dietitian assessments on weight gain in infants with cystic fibrosis. J Cyst Fibros. 2022 Jan;21(1):115-122. doi: 10.1016/j.jcf.2021.08.005. Epub 2021 Aug 26. PMID: 34454845; PMCID: PMC8844148

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