Chronic Diseases

Publication Category: Chronic Diseases

Evaluating barriers to and promoters of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs

Gifford AH, Ong T, Dowd C, Van Citters AD, Scalia P, Sabadosa KA, Sawicki GS. Evaluating barriers to and promoters of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs. J Cyst Fibros. 2021 Dec;20 Suppl 3:9-13. doi: 10.1016/j.jcf.2021.08.034. PMID: 34930545; PMCID: PMC8683125

Telehealth use in cystic fibrosis during COVID-19: Association with race, ethnicity, and socioeconomic factors

Albon D, Van Citters AD, Ong T, Dieni O, Dowd C, Willis A, Sabadosa KA, Scalia P, Reno K, Oates GR, Schechter MS. Telehealth use in cystic fibrosis during COVID-19: Association with race, ethnicity, and socioeconomic factors. J Cyst Fibros. 2021 Dec;20 Suppl 3:49-54. doi: 10.1016/j.jcf.2021.09.006. PMID: 34930543; PMCID: PMC8683127

Implementation strategies for depression and anxiety screening in a pediatric cystic fibrosis center: A quality improvement project

Liu FF, Lew A, Andes E, McNamara S, Cassidy J, Whitmore S, Plunkett R, Ong T. Implementation strategies for depression and anxiety screening in a pediatric cystic fibrosis center: A quality improvement project. Pediatr Pulmonol. 2020 Dec;55(12):3328-3336. doi: 10.1002/ppul.24951. Epub 2020 Oct 16. PMID: 32644305

Integration of mental health screening and treatment into cystic fibrosis clinics: Evaluation of initial implementation in 84 programs across the United States

Quittner AL, Abbott J, Hussain S, Ong T, Uluer A, Hempstead S, Lomas P, Smith B. Integration of mental health screening and treatment into cystic fibrosis clinics: Evaluation of initial implementation in 84 programs across the United States. Pediatr Pulmonol. 2020 Nov;55(11):2995-3004. doi: 10.1002/ppul.24949. Epub 2020 Jul 21. PMID: 32649006

Development and evaluation of an EHR-based computable phenotype for identification of pediatric Crohn’s disease patients in a National Pediatric Learning Health System

Khare R, Kappelman MD, Samson C, Pyrzanowski J, Darwar RA, Forrest CB, Bailey CC, Margolis P, Dempsey A; And the PEDSnet Computable Phenotype Working Group. Development and evaluation of an EHR-based computable phenotype for identification of pediatric Crohn’s disease patients in a National Pediatric Learning Health System. Learn Health Syst. 2020 Aug 28;4(4):e10243. doi: 10.1002/lrh2.10243. […]

A preliminary investigation of the psychometric properties of PROMIS® scales in emerging adults with sickle cell disease

Hildenbrand AK, Quinn CT, Mara CA, Peugh JL, McTate EA, Britto MT, Crosby LE. A preliminary investigation of the psychometric properties of PROMIS® scales in emerging adults with sickle cell disease. Health Psychol. 2019 May;38(5):386-390. doi: 10.1037/hea0000696. PMID: 31045421; PMCID: PMC6501803

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