PEDSnet Studies

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Investigating timing of diagnosis and equitable care in children with Turner syndrome

PEDSNet data will be used to identify temporal changes in timing of diagnosis following updated Turner syndrome guidelines in 2017, in addition to association of race, ethnicity and insurance status to timing of diagnosis. Existing dataset of children with Turner…

Effect of pubertal hormones on Headache in Transmasculine Adolescents

Headache has been one of the top three causes of disability adjusted life years for the past three decades among adolescents and young adults. The inspiration for this research comes from the disproportionately higher burden that falls on girls and…

Development of Brief Screening Algorithm for Early Identification of VWD in Women (Developing Primary Care Algorithms for Early Identification of Young Women with von Willebrand Disease)

Bleeding disorders in women are an under-recognized and under-treated condition, and von Willebrand Disease (VWD) is the most common bleeding disorder diagnosed in women. This study will develop a screening algorithm for VWD that incorporates a brief bleeding history and…

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