PEDSnet/SCILHS Healthy Weight Network Clinic Survey‌

Healthy Weight Network is a group of pediatric weight management cinches at the eight children’s hospitals that comprise A National Pediatric Learning Health (PEDSnet) and 3 sites within Scalable Collaborative Infrastructure for a Learning Health. The purpose of this study is to:
1. Demonstrate the viability of the clinic consortium to feasibly
2. Survey a large portion of the patient population
3. Demonstrate ability to link survey responses to the PEDSnet database of measures derived from patient EHR
4. Use patient/parent-reported outcomes to learn about the health and well-being of these patients, including family involvement
5. Understand how patients may want to be involved in future research
6. Document willingness to be contracted for future research
7. Describe the association between patient/parent-reported outcomes and EHR-derived measures of patient health burden and healthcare utilization

Clinical Outcomes by Language of Care in Pediatric Oncology

Although language disparities in outcomes are well documented in general pediatrics and adult oncology, little is known in pediatric oncology. Patient or family language is not included in many multi- institutional databases and patient registries, limiting studies of language-based inequities…

Extreme weather impacts on children’s acute and chronic health outcomes; a multisite study with evaluation of vulnerabilities

The “Extreme Weather and Pediatric Health Outcomes” study investigates the impact of climate change-related extreme weather events, such as extreme heat and heavy rainfall, on children’s health across the United States. This innovative research aims to address critical knowledge gaps…

Characterization of Babies Born with Hemolytic Disease of the Fetus/Newborn (HDFN)

Hemolytic disease of the fetus and newborn (HDFN) otherwise known as erythroblastosis fetalis, is a disease in which fetal and neonatal erythrocytes are destroyed by maternal IgG alloantibodies. Before the first RhD immunoprophylaxis was introduced as a treatment in 1968,…

Scroll to Top