Congenital heart defects, or CHDs, are the most common type of birth defect. CHDs can be noncomplex or complex. Examples of noncomplex CHDs include an issue with one heart valve or a hole in the heart. Complex CHDs may affect several parts of the heart or the way the blood circulates. Nearly 150,000 adults in the United States have a complex CHD.
Guidelines from the American Heart Association and the American College of Cardiology recommend that patients with complex CHDs see a heart doctor every one to two years. But many patients don’t see a heart doctor until they have serious health problems.
In this study, the research team is looking to see how often adults with CHDs receive recommended care from a heart doctor. The team also wants to learn how outcomes differ when patients do or do not receive recommended care from a heart doctor.
Does Receiving Guidelines-Based Care Improve Health Outcomes for Adults with Congenital Heart Defects? — The CHI-RON Study
Funding Source:
Participating PEDSnet Sites:
- Cincinnati Children’s Hospital Medical Center
- Children’s Hospital of Philadelphia
- Nationwide Children’s Hospital
Study Investigator:
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