PEDSnet Production Database


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dc.contributor.authorPEDSnet
dc.date.accessioned2026-05-08T13:54:04Z
dc.date.created2026-04
dc.date.submitted2026-03
dc.descriptionThis database uses the PEDSnet Common Data Model and consists of 24 tables that represent over 14 million patients. PEDSnet’s data network is one of the valuable resources it brings to accelerating the study of child health. The PEDSnet Coordinating Center partners with the informatics teams at each PEDSnet institution to continually assess current network data and strengthen the data infrastructure for a wide range of studies. <br><br> <h4><center>PEDSnet Summary Statistics<br> <b>N = 15,877,731</b> </center></h4> <br> <details> <summary><b>PEDSnet Database Population</b></summary> <br> ##### **Total Database Population** |Active (visit in last 18 months) |Overall | |--------------------------------|------------------| |N= 5,757,204 |N= 15,877,731 | {.documentation-table} <br> ##### **Database Population by Collaborating Institution** | Institution | Active (visit in last 18 months) | Overall | |:--------------|:-----------------------------------|:------------------| | CCHMC |513,301 (8.9%) |1,186,563 (7.5%) | | CHOP |705,500 (12.3%) |1,826,098 (11.5%) | | Colorado |458,571 (8.0%) |1,544,420 (9.7%) | | Lurie |314,649 (5.5%) |1,095,463 (6.9%) | | National |704,049 (12.2%) |1,884,762 (11.9%) | | Nationwide |512,847 (8.9%) |1,267,460 (8.0%) | | Nemours |712,526 (12.4%) |2,080,029 (13.1%) | | Seattle |279,084 (4.8%) |979,653 (6.2%) | | Stanford | 404,859 (7.0%) |1,000,490 (6.3%) | | Texas |1,151,818 (20.0%) |3,012,793 (19.0%) | {.documentation-table} <br> ##### **Age at first Visit** | Age (in years) | Active (visit in last 18 months) | Overall | |:-----------------|:-----------------------------------|:------------------| | 0 - <1 |2,804,481 (48.7%) |5,314,930 (33.5%) | | 1 - 4 |1,273,654 (22.1%) |3,509,180 (22.1%) | | 5 - 11 |963,136 (16.7%) |3,429,633 (21.6%) | | 12 - 17 |420,804 (7.3%) |2,159,190 (13.6%) | | 18 - 24 |59,518 (1.0%) |346,888 (2.2%) | | 25+ |235,611 (4.1%) |1,091,142 (6.9%) | | Mean |4.8 |7.5 | | Median [Q1, Q3] |1.1 [0.0, 6.2] |3.6 [0.3, 11.1] | {.documentation-table} <br> ##### **Age at Last Visit** | Age (in years) | Active (visit in last 18 months) | Overall | |:-----------------|:------------------------|:------------------| | 0 |347,118 (6.0%) |986,906 (6.2%) | | 1 - 4 |1,164,021 (20.2%) |2,875,566 (18.1%) | | 5 - 11 |1,855,224 (32.2%) |4,319,348 (27.2%) | | 12 - 17 |1,540,124 (26.8%) |4,285,303 (27.0%) | | 18 - 24 |495,036 (8.6%) |1,950,633 (12.3%) | | 25+ |355,681 (6.2%) |1,433,207 (9.0%) | | Mean |11.4 |12.8 | | Median [Q1, Q3] |10.1 [4.7, 15.7] |11.6 [5.1, 17.4] | {.documentation-table} <br> ##### **Duration of Follow-up (in years)** | | Active (visit in last 18 months) | Overall | |:----------------|:-----------------------------------|:----------------| | Mean |6.6 |5.3 | | Median [Q1, Q3] | 5.3 [1.6, 10.6] | 3.4 [0.4, 8.9] | {.documentation-table} <br> ##### **Duration of Follow-up for All Chronic Patients (in years)*** | | Active (visit in last 18 months) | Overall | |:----------------|:-----------------------------------|:----------------| | Mean |8.1 |7.5 | | Median [Q1, Q3] | 7.2 [3.3, 12.1] | 6.4 [2.7, 11.5] | {.documentation-table} <br> *Chronic refers to patients who were flagged as “Complex Chronic” or “Noncomplex Chronic” using PMCA. <br> ##### **Year of Cohort Entry** | | Active (visit in last 18 months) | Overall | |:----------------|:-----------------------------------|:------------------| | Mean |2019 |2016 | | Median [Q1, Q3] |2020 [2015, 2024] |2016 [2011, 2021] | {.documentation-table} <br> ##### **Insurance** | Payer | Active (visit in last 18 months) | Overall | |:------------------|:-----------------------------------|:------------------| | Medicare/Medicaid |1,905,858 (33.1%) |4,986,449 (31.4%) | | Private |2,796,241 (48.6%) |7,769,333 (48.9%) | | Other/Unknown |1,055,105 (18.3%) |3,121,949 (19.7%) | {.documentation-table} <br> ##### **Medical Complexity** | PMCA | Active (visit in last 18 months) | Overall | |:--------------------------------------------|:-----------------------------------|:-------------------| | Complex Chronic (malignant, progressive, or 2+ body systems) | 520,406 (9.0%) | 792,491 (5.0%) | | Noncomplex Chronic | 834,587 (14.5%) |1,368,925 (8.6%) | | No Chronic Disorders | 4,402,211 (76.5%) | 13,689,547 (86.2%) | {.documentation-table} <br> </details> <br> <details> <summary><b>Demographics</b></summary> <br> | Sex | Active (visit in last 18 months) | Overall | |:-------|:-----------------------------------|:------------------| | Female |2,904,702 (50.5%) |8,025,808 (50.5%) | | Male |2,851,599 (49.5%) |7,836,708 (49.4%) | {.documentation-table} <br> | Race | Active (visit in last 18 months) | Overall | |:---------------------------------------------|:-----------------------------------|:------------------| | American Indian or Alaska Native | 20,323 (0.4%) |55,900 (0.4%) | | Asian/Native Hawaiian/Other Pacific Islander |358,331 (6.2%) |851,229 (5.4%) | | Black/African American |957,690 (16.6%) |2,374,844 (15.0%) | | White |2,958,702 (51.4%) |8,362,218 (52.7%) | | Multiple race |299,676 (5.2%) |618,028 (3.9%) | | Other** |1,000,428 (17.4%) |2,676,234 (16.9%) | | Unknown |162,054 (2.8%) |939,278 (5.9%) | {.documentation-table} <br> **Other refers to the following responses from the EHR: “Other” or “Refuse to answer”. <br> | Ethnicity | Active (visit in last 18 months) | Overall | |:--------------|:-----------------------------------|:------------------| | Hispanic | 1,298,632 (22.6%) |3,221,529 (20.3%) | | Not Hispanic |3,896,976 (67.7%) |10,491,082 (66.1%) | | Other/Unknown |561,596 (9.8%) |2,165,120 (13.6%) | {.documentation-table} <br> </details> <br> <details> <summary><b>Prevalence of Common Health Conditions</b></summary> <br> | Health Condition | N | Prevalence per 10,000 patients in database | |:------------------------------------------------------------------|--------:|---------------------------------------------:| | Appendicitis | 113,589 |72 | | Juvenile Idiopathic Arthritis | 28,947 |18 | | Asthma | 1,425,915 |898 | | Bronchopulmonary dysplasia | 38,438 |24 | | Brain tumor | 37,430 |24 | | Chronic Granulomatous Disease | 532 |0 | | Cystic Fibrosis | 14,097 |9 | | Duchenne muscular dystrophy | 12,696 |8 | | Inflammatory bowel disease (Ulcerative Colitis + Crohn’s Disease) | 49,034 |31 | | Immune Thrombocytopenic Purpura |3,125 |2 | | Leukemia + Lymphoma | 51,329 | 32 | | Lyme Disease |27,514 |17 | | Sickle Cell Anemia | 22,813 | 14 | | Seizure Disorder | 479,812 | 302 | | Type 1 Diabetes | 90,767 | 57 | {.documentation-table} </details>
dc.description.abstractPEDSnet production database containing de-identified aggregate electronic healthcare information for ten contributing pediatric healthcare institutions. This database (2026-04) corresponds to Version 6.1 of the PEDSnet data model. <br> ##### **Learn about how to access PEDSnet data for research [here](https://pedsnet.org/database/access-to-data/) or, submit a [collaboration request](https://pedsnet.org/work-with-us/collaboration-request/).** <br>
dc.identifier.urihttps://hdl.handle.net/20.500.14642/1017.10
dc.publisherPEDSnet
dc.rightsa BSD 2-Clause License.
dc.rights.urihttps://opensource.org/license/bsd-2-clause
dc.subjectPEDSnet Data Source
dc.titlePEDSnet Production Database
dc.typeDatabase
dspace.entity.typeDocumentation
local.subject.flatPEDSnet Data Source
project.endDate2026-03
project.startDate2026-02
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10*
 2026-05-08 08:19:54
V6.1
9
 2025-11-10 14:37:03
V6.0
8
 2025-09-04 10:30:45
V5.9
7
 2025-09-04 10:21:31
V5.8
6
 2025-05-09 11:29:39
V5.7
5
 2025-05-05 13:27:19
V5.6
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 2025-05-05 13:24:15
V5.5
3
 2025-05-05 13:19:19
V5.4
2
 2025-05-05 13:09:52
V5.3
1
 2025-05-05 11:26:46
V5.2
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