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PEDSnet Production Database (2025-01)
Abstract
PEDSnet production database containing de-identified aggregate electronic healthcare information for ten contributing pediatric healthcare institutions. This database corresponds to Version 5.6 of the PEDSnet data model.
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Affiliation(s)
Provenance
Description
This database uses the PEDSnet Common Data Model and consists of 24 tables that represent over 14 million patients. PEDSnet’s data network is one of the valuable resources it brings to accelerating the study of child health. The PEDSnet Coordinating Center partners with the informatics teams at each PEDSnet institution to continually assess current network data and strengthen the data infrastructure for a wide range of studies.
PEDSnet Database Population
Total Database Population
| Active (visit in last 18 months) | Overall |
|---|---|
| N=5,502,863 | N=14,266,572 |
Database Population by Collaborating Institution
| Institution | Active | Overall |
|---|---|---|
| CCHMC | 518,151 (9.4%) | 1,090,047 (7.6%) |
| CHOP | 690,697 (12.6%) | 1,664,458 (11.7%) |
| Colorado | 434,461 (7.9%) | 1,395,086 (9.8%) |
| Lurie | 302,830 (5.5%) | 984,225 (6.9%) |
| National | 650,142 (11.8%) | 1,680,087 (11.8%) |
| Nationwide | 485,087 (8.8%) | 1,138,145 (8.0%) |
| Nemours | 692,278 (12.6%) | 1,852,974 (13.0%) |
| Seattle | 245,093 (4.5%) | 859,788 (6.0%) |
| Stanford | 354,344 (6.4%) | 876,281 (6.1%) |
| Texas | 1,129,780 (20.5%) | 2,725,481 (19.1%) |
Age at first Visit
| Age (in years) | Active (visit in last 18 months) | Overall |
|---|---|---|
| 0 | 2,572,896 (46.8%) | 4,705,951 (33.0%) |
| 4-Jan | 1,258,963 (22.9%) | 3,195,992 (22.4%) |
| 11-May | 978,192 (17.8%) | 3,119,302 (21.9%) |
| 17-Dec | 419,117 (7.6%) | 1,944,787 (13.6%) |
| 18 - 24 | 55,717 (1.0%) | 313,021 (2.2%) |
| 25+ | 217,978 (4.0%) | 959,816 (6.7%) |
| Mean | 4.9 | 7.5 |
| Median [Q1, Q3] | 1.3 [0.0, 6.6] | 3.7 [0.4, 11.1] |
Age at Last Visit
| Age (in years) | Active | Overall |
|---|---|---|
| 0 | 324,258 (5.9%) | 903,843 (6.3%) |
| 4-Jan | 1,142,258 (20.8%) | 2,690,611 (18.9%) |
| 11-May | 1,787,033 (32.5%) | 3,969,224 (27.8%) |
| 17-Dec | 1,446,719 (26.3%) | 3,785,470 (26.5%) |
| 18 - 24 | 485,595 (8.8%) | 1,669,617 (11.7%) |
| 25+ | 317,000 (5.8%) | 1,220,104 (8.6%) |
| Mean | 11.2 | 12.5 |
| Median [Q1, Q3] | 9.9 [4.6, 15.6] | 11.2 [4.9, 17.1] |
Duration of Follow-up (in years)
| Active | Overall | |
|---|---|---|
| Mean | 6.4 | 5.1 |
| Median [Q1, Q3] | 5.1 [1.6, 10.1] | 3.2 [0.4, 8.4] |
Duration of Follow-up for All Chronic Patients (in years)
| Active | Overall | |
|---|---|---|
| Mean | 7.8 | 7.2 |
| Median [Q1, Q3] | 6.8 [3.1, 11.8] | 6.0 [2.5, 11.1] |
Year of Cohort Entry
| Active | Overall | |
|---|---|---|
| Mean | 2017 | 2015 |
| Median [Q1, Q3] | 2018 [2013, 2022] | 2015 [2011, 2019] |
Insurance
| Payer | Active | Overall |
|---|---|---|
| Medicare/Medicaid | 1,635,194 (29.7%) | 3,976,139 (27.9%) |
| Private | 2,639,882 (48.0%) | 6,914,510 (48.5%) |
| Other/Unknown | 1,227,787 (22.3%) | 3,375,923 (23.7%) |
Medical Complexity
| PMCA | Active | Overall |
|---|---|---|
| Complex Chronic (malignant, progressive, or 2+ body systems) | 491,360 (8.9%) | 722,557 (5.1%) |
| Noncomplex Chronic | 784,980 (14.3%) | 1,234,295 (8.7%) |
| No Chronic Disorders | 4,226,523 (76.8%) | 12,282,017 (86.1%) |
Demographics
| Sex | Active | Overall |
|---|---|---|
| Female | 2,779,381 (50.5%) | 7,202,600 (50.5%) |
| Male | 2,722,463 (49.5%) | 7,049,052 (49.4%) |
| Race | Active | Overall |
|---|---|---|
| American Indian or Alaska Native | 17,919 (0.3%) | 47,866 (0.3%) |
| Asian/Native Hawaiian/Other Pacific Islander | 329,449 (6.0%) | 744,846 (5.2%) |
| Black/African American | 939,968 (17.1%) | 2,182,847 (15.3%) |
| White | 2,901,233 (52.7%) | 7,598,487 (53.3%) |
| Multiple race | 220,361 (4.0%) | 460,030 (3.2%) |
| Other** | 777,236 (14.1%) | 2,012,918 (14.1%) |
| Unknown | 316,697 (5.8%) | 1,219,578 (8.5%) |
| Ethnicity | Active | Overall |
|---|---|---|
| Hispanic | 1,207,794 (21.9%) | 2,814,420 (19.7%) |
| Not Hispanic | 3,806,589 (69.2%) | 9,536,181 (66.8%) |
| Other/Unknown | 488,480 (8.9%) | 1,915,971 (13.4%) |
Prevalence of Common Health Conditions
| Conditions | N | Prevalence per 10,000 patients |
|---|---|---|
| Appendicitis | 98,105 | 69 |
| Juvenile Idiopathic Arthritis | 25,630 | 18 |
| Asthma | 1,279,572 | 897 |
| Bronchopulmonary dysplasia | 32,702 | 23 |
| Brain tumor | 33,117 | 23 |
| Chronic Granulomatous Disease | 450 | 0 |
| Cystic Fibrosis | 13,200 | 9 |
| Duchenne muscular dystrophy | 11,515 | 8 |
| Inflammatory bowel disease (Ulcerative Colitis + Crohn’s Disease) | 42,669 | 30 |
| Immune Thrombocytopenic Purpura | 2,456 | 2 |
| Leukemia + Lymphoma | 44,639 | 31 |
| Lyme Disease | 24,104 | 17 |
| Sickle Cell Anemia | 20,844 | 15 |
| Seizure Disorder | 425,370 | 298 |
| Type 1 Diabetes | 80,273 | 56 |
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Creative Commons license
Except where otherwised noted, this item's license is described as a BSD 2-Clause License.