Cohort Attrition Study Results Part III: SSDQA Comparison


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dc.contributor.authorWieand, Kaleigh
dc.contributor.otherPEDSnet Data Coordinating Center
dc.date.accessioned2025-12-19T16:52:16Z
dc.date.created2025-10
dc.description- The previous round of data quality analysis revealed that the issue with two sites dropping out of the cohort was likely due to the lab result parsing rather than the presence of labs in the first place. The attrition criteria was adjusted to only require that an SCD lab have been conducted, rather than also requiring a positive result. This was deemed acceptable because of the existing diagnosis requirement ensuring that all patients would have been formally diagnosed with SCD, regardless of the results of their labs. - Cohort size increased overall across all institutions. There still appears to be a notable drop off between steps 3 and 4 despite the adjusted lab requirement. - CCHMC & Stanford now have patients present in the cohort, although the counts are still relatively small. This may be due to the demographic makeup of these institutions rather than indicative of a data quality issue, but we will conduct further analysis to be sure.
dc.description.abstractThe results of a Cohort Attrition check using the Multi-Site, Exploratory, Cross-Sectional parameters. This check investigates the patient retention at each step of the attrition, after adjustments were made to the attrition criteria to remove the need for parsing lab result values.
dc.identifier.urihttps://hdl.handle.net/20.500.14642/1225.3
dc.publisherPEDSnet
dc.rightsa CC-BY Attribution 4.0 license.
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectCross-Sectional Analysis
dc.subjectMulti-Site Analysis
dc.subjectExploratory Analysis
dc.subjectPerson-Level Analysis
dc.subject.meshAnemia, Sickle Cell
dc.subject.meshHematologic Tests
dc.subject.meshHematologic Diseases
dc.titleCohort Attrition Study Results Part III: SSDQA Comparison
dc.typestudy
dspace.entity.typeDQResult
local.admin.notev57
local.description.outcomesThe results of this attrition are more aligned with expectations compared to the previous two attrition results. We will conduct some additional data quality analysis to ensure that fact density and the presence of key variables is still in line with study needs based on this updated cohort.
local.dqcheck.outcomesAdditional DQ Investigation
local.dqcheck.resultobsDisparate Site Behavior
local.dqcheck.resultobsExpected Patient Retention
local.subject.DataProvPEDSnet Data Source
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VersionDateSummary
4
 2026-02-25 14:29:03
Fourth round of cohort attrition conducted after after an additional attrition step was added requiring 2 or more Sickle Cell Anemia (SCA) diagnoses for each patient.
3*
 2025-12-19 11:47:51
Third round of cohort attrition conducted after adjustments were made to the attrition criteria to remove the need for parsing lab result values.
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