Determining Barriers Leading to Inferior Survival for Black and Hispanic Patients with Hodgkin Lymphoma: A Patient-Centered Study
Five-year relative survival rates for Hodgkin lymphoma (HL) are excellent at ~90%, yet Black and Hispanic patients have worse survival outcomes than White patients across all age groups (children, young adults, and older adults). HL’s age distribution and generally high…
Comparative Effectiveness of Emerging Medications in Children with Inflammatory Bowel Disease (COMPARE)
Crohn’s disease (CD) and ulcerative colitis (UC) are chronic inflammatory bowel diseases (IBDs) that affect approximately 1.2 million individuals in the United States, cost over $6 billion annually, and cause substantial patient morbidity, missed work and school, and diminished quality…
PCORnet Bariatric Study (PBS)
The use of bariatric surgery as a treatment for severe obesity has increased dramatically over the past two decades, but there have been few high-quality, long-term studies comparing the outcomes of different procedures. Prior studies have also not been large…
PEDSnet: Advancing Pediatric Patient-Centered Outcomes Research in PCORnet
PEDSnet’s guiding purpose is to improve child health through knowledge production that is efficient (produced faster at less cost) and meaningful (useful to patients, caregivers, clinicians, and health system leaders). Led by the Children’s Hospital of Philadelphia (CHOP), PEDSnet is…
COVID-19 Healthcare Worker Exposure Response & Outcomes (HERO) Trial
Importance: Healthcare workers are on the front-lines of the COVID-19 pandemic and may be disproportionately affected by it. Objective: To assess the effects of the pandemic on the health and lives of US healthcare workers. Design: Survey of US healthcare…
How Accurate Are PCORnet® Data for Measures of Children’s Healthcare Quality? — A PCORnet® Study
Health systems use quality measures to assess how well they deliver care to patients. These measures require accurate data. Health systems often do a manual medical chart review to get accurate data. To do a manual review, staff combine data…
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