The goal of this study is to create a sustainable and expandable Pediatric Glomerular Disease Learning Network to address fundamental limitations of current observational cohorts and registries and focus on practice pattern variation, observational outcomes and comparative effectiveness research, and ultimately pragmatic clinical trials. The objectives of this study are: to develop and validate a computable phenotype for the identification of glomerular disease in PEDSnet, to establish a collaborative of nephrologists from the 8 participating institutions committed to the creation and maintenance of a Pediatric Glomerular Disease Learning Network, and to promote the standardization of data collected in the course of clinical care. This study is an observational, cross-sectional analysis using previously collected data.
Funding Source:
Participating PEDSnet Sites:
- Children’s Hospital of Philadelphia
- Boston Children’s Hospital
- Children’s Hospital Colorado
- Nationwide Children’s Hospital
- Nemours Children’s Health
- St. Louis Children’s Hospital
- Seattle Children’s Hospital
Study Investigator:
Danielle Soranno (CHCO), Joseph Flynn (SEA), Joshua Zaritsky (Nemours), Mark Mitsnefes (CCHMC), David Hooper (CCHMC), Michael Somers (BCH), Vikas Dharnidharka (STL), William Smoyer (NCH)
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