I’m a junior in high school, and have been involved with the PEDSnet Youth Advisory Council for over a year now. I really enjoy being involved in programs and studies that I feel have the ability to make a positive impact on someone else’s life, and I love getting to meet and collaborate with others […]
Letitia is excited to be part of the PEDSnet Family Advisory Council as a parent of a child with chronic illnesses. Her son has neurofibromatosis (NF), a genetic disorder that causes tumors, as well as anxiety and depression. She has previously worked as an advocate for families affected by NF and active fundraiser for the […]
Jennifer is a longtime healthcare professional and a mother of two boys who engage regularly with the healthcare system. She is particularly passionate about supporting caregivers with children and teens with Autism/ADHD as well as the hospitalized child and their family.
Ella is from Chicago, Illinois and is a pre-med student at Trinity College in Hartford, Connecticut. She embraces every opportunity to learn about pediatric research as she prepares for her career in medicine.
I’m 16 years old and a junior in high school. I have lupus and have been a part of many research studies, including YAC since 2023.
Lisa Treleaven has three wonderful children, one of whom has complex medical needs including a tracheostomy. Lisa holds a Doctor of Education in Executive Leadership in Mental Health and Human Services and is a Licensed Professional Counselor in Texas, She is an experienced family advisor on the topic of children with special healthcare needs and […]
Ed studied psychology at Louisiana State University. This has been the perfect background for his career in Real Estate where he serves as President of Beth Wolff Realtors. Ed’s daughter Tenley is a cardiac patient with Texas Children’s hospital and has had multiple procedures there throughout her life. She is doing well and is studying […]
Dr. Beth Bollinger is a research scientist at Seattle Children’s Research Institute. She provides mixed methodological expertise to various studies at Seattle Children’s which evaluate ways to improve health outcomes for adolescents and families. Dr. Bollinger has been leading the PEDSnet Engagement Core since 2020 and actively conducts research that better understands, incorporates, and elevates […]
As the parent of a child with a rare disease, the work of PEDSnet is deeply important and relevant. I have learned a lot in the years managing my son’s care, especially the importance for having trust and open communication between patients and providers. I have valuable insights to offer and feel fortunate to work […]
I’m a parent of an 14 year old boy with cystic fibrosis (CF). In 2014 I had the opportunity to join LPCH Family Centered Care and have learned how to provide input from a parent perspective as a way to partner with staff to improve the family experience as a whole. I was also trained […]
