Determining Barriers Leading to Inferior Survival for Black and Hispanic Patients with Hodgkin Lymphoma: A Patient-Centered Study
Five-year relative survival rates for Hodgkin lymphoma (HL) are excellent at ~90%, yet Black and Hispanic patients have worse survival outcomes than White patients across all age groups (children, young adults, and older adults). HL’s age distribution and generally high…
Clinical Outcomes by Language of Care in Pediatric Oncology
Although language disparities in outcomes are well documented in general pediatrics and adult oncology, little is known in pediatric oncology. Patient or family language is not included in many multi- institutional databases and patient registries, limiting studies of language-based inequities…
Defining the epidemiology and impacts of iron overload in children undergoing bone marrow transplants for hematological disorders.
This study focuses on iron overload in pediatric patients undergoing hematopoietic stem cell transplantation (HSCT) for non-malignant blood disorders (NMBD). In recent years, HSCT for NMBD has increased, but little data exists on how iron overload, often caused by blood…
National estimate for sterile injectable chemotherapy use for pediatric cancer patients
Cancer afflicts approximately 15,000 children annually in the United States. In recent years, drug shortages for sterile injectable chemotherapies have occurred in the United States. This study seeks to estimate the amount of sterile chemotherapy used each year in the…
Growing National Rare Pediatric Brain Tumor Biobank Specimens From a National LHS
This research focuses on the intersection of two national longitudinal health data collection projects: The Children’s Brain Tumor Tissue Consortium (CBTTC) and the PEDSnet Clinical Data Research Network (CDRN) with the intention of harmonizing the two national projects as they…
Advancing Collaborative Pediatric Brain Tumor Research Through Temporally Based Predictive Modeling of a Large Scale National CDRN
Predictive models on temporal data in the form of observations in a sequence or series have helped make headway in utilizing large sets of clinical data collected from health systems in the electronic medical record and billing systems to predict…
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