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PEDSnet Production Database (2024-04)
| dc.contributor.author | PEDSnet |
| dc.contributor.other | PEDSnet Data Coordinating Center |
| dc.date.accessioned | 2025-05-05T17:11:39Z |
| dc.date.created | 2024-04 |
| dc.date.submitted | 2024-01 |
| dc.description | PEDSnet’s data network is one of the valuable resources it brings to accelerating the study of child health. The PEDSnet Coordinating Center partners with the informatics teams at each PEDSnet institution to continually assess current network data and strengthen the data infrastructure for a wide range of studies. <br> <br> <details> <summary>PEDSnet Database Population</summary> <br> ##### **Total Database Population** **N = 14,097,043** ##### **Database Population by Collaborating Institution** | Institution | Overall | |:--------------|:------------------| | CCHMC | 1,077,315 (7.6%) | | CHOP | 1,639,858 (11.6%) | | Colorado | 1,421,166 (10.1%) | | Lurie | 967,705 (6.9%) | | National | 1,656,202 (11.7%) | | Nationwide | 1,125,752 (8.0%) | | Nemours | 1,820,805 (12.9%) | | Seattle | 848770 (6.0%) | | Stanford | 857,113 (6.1%) | | Texas | 2,682,357 (19.0%) | {.documentation-table} <br> ##### **Age at first Visit** | Age at First Visit (in years) | Overall | |:--------------------------------|:------------------| | 0 | 4,634,710 (32.9%) | | 1 - 4 | 3,160,800 (22.4%) | | 5 - 11 | 3,087,757 (21.9%) | | 12 - 17 | 1,927,002 (13.7%) | | 18 - 24 | 310,517 (2.2%) | | 25+ | 946,845 (6.7%) | | Mean | 7.5 | | Median [Q1, Q3] | 3.7 [0.4, 11.1] | {.documentation-table} <br> ##### **Age at Last Visit** | Age (in years) | Overall | |:-----------------|:------------------| | 0 | 904,553 (6.4%) | | 1 - 4 | 2,673,824 (19.0%) | | 5 - 11 | 3,925,761 (27.8%) | | 12 - 17 | 3,731,891 (26.5%) | | 18 - 24 | 1,631,648 (11.6%) | | 25+ | 1,199,954 (8.5%) | | Mean | 12.5 | | Median [Q1, Q3] | 11.1 [4.9, 17.1] | {.documentation-table} <br> ##### **Medical Complexity** | PMCA | Overall | |:-------------------------------------------------------------|:-------------------| | Complex Chronic (malignant, progressive, or 2+ body systems) | 713,926 (5.1%) | | Noncomplex Chronic | 1,218,744 (8.6%) | | No Chronic Disorders | 12,134,961 (86.1%) | {.documentation-table} <br> </details> <br> <details> <summary>Demographics</summary> <br> | Sex | Overall | |:-------|:------------------| | Female | 7,113,152 (50.5%) | | Male | 6,968,084 (49.4%) | {.documentation-table} <br> | Race | Overall | |:---------------------------------------------|:------------------| | American Indian or Alaska Native | 37,925 (0.3%) | | Asian/Native Hawaiian/Other Pacific Islander | 723,127 (5.1%) | | Black/African American | 2,151,044 (15.3%) | | White | 7,490,583 (53.1%) | | Multiple race | 448,841 (3.2%) | | Other** | 2,004,880 (14.2%) | | Unknown | 1,240,643 (8.8%) | {.documentation-table} <br> | Ethnicity | Overall | |:--------------|:------------------| | Hispanic | 2,755,415 (19.5%) | | Not Hispanic | 9,397,235 (66.7%) | | Other/Unknown | 1,944,393 (13.8%) | {.documentation-table} <br> </details> <br> <details> <summary>Prevalence of Common Health Conditions</summary> <br> | Health Conditions | N | Prevalence per 10,000 patients in database | |:------------------------------------------------------------------|--------:|---------------------------------------------:| | Appendicitis | 94589 | 68 | | Juvenile Idiopathic Arthritis | 25892 | 19 | | Asthma | 1241390 | 895 | | Bronchopulmonary dysplasia | 31627 | 23 | | Brain tumor | 32547 | 23 | | Chronic Granulomatous Disease | 479 | 0 | | Cystic Fibrosis | 13137 | 9 | | Duchenne muscular dystrophy | 11510 | 8 | | Inflammatory bowel disease (Ulcerative Colitis + Crohn’s Disease) | 41362 | 30 | | Immune Thrombocytopenic Purpura | 2845 | 2 | | Leukemia + Lymphoma | 43181 | 31 | | Lyme Disease | 23758 | 17 | | Sickle Cell Anemia | 20415 | 15 | | Seizure Disorder | 411099 | 296 | | Type 1 Diabetes | 77869 | 56 | {.documentation-table} </details> |
| dc.description.abstract | PEDSnet production database containing de-identified aggregate electronic healthcare information for ten contributing pediatric healthcare institutions. This database corresponds to Version 5.3 of the PEDSnet data model. <br> <br> #### **Learn about how to access PEDSnet data for research [here](https://pedsnet.org/database/access-to-data/).** <br> #### **Submit a [collaboration request](https://pedsnet.org/work-with-us/collaboration-request/).** <br> |
| dc.identifier.uri | https://pedsnetapps.chop.edu/handle/20.500.14642/1017.2 |
| dc.publisher | PEDSnet |
| dc.relation.uri | https://pedsnet.org/database/access-to-data/ |
| dc.rights | a BSD 2-Clause License. |
| dc.rights.uri | https://opensource.org/license/bsd-2-clause |
| dc.subject | PEDSnet Data Source |
| dc.title | PEDSnet Production Database (2024-04) |
| dc.type | Database |
| dspace.entity.type | Documentation |
| local.subject.flat | PEDSnet Data Source |
| project.endDate | 2024-03 |
| project.startDate | 2024-01 |
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