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PEDSnet Production Database (2024-04)
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Submission Date
2024-01
Data Collection
2024-01 - 2024-03
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Abstract
PEDSnet production database containing de-identified aggregate electronic healthcare information for ten contributing pediatric healthcare institutions. This database corresponds to Version 5.3 of the PEDSnet data model.
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Description
PEDSnet’s data network is one of the valuable resources it brings to accelerating the study of child health. The PEDSnet Coordinating Center partners with the informatics teams at each PEDSnet institution to continually assess current network data and strengthen the data infrastructure for a wide range of studies.
PEDSnet Database Population
Total Database Population
N = 14,097,043
Database Population by Collaborating Institution
| Institution | Overall |
|---|---|
| CCHMC | 1,077,315 (7.6%) |
| CHOP | 1,639,858 (11.6%) |
| Colorado | 1,421,166 (10.1%) |
| Lurie | 967,705 (6.9%) |
| National | 1,656,202 (11.7%) |
| Nationwide | 1,125,752 (8.0%) |
| Nemours | 1,820,805 (12.9%) |
| Seattle | 848770 (6.0%) |
| Stanford | 857,113 (6.1%) |
| Texas | 2,682,357 (19.0%) |
Age at first Visit
| Age at First Visit (in years) | Overall |
|---|---|
| 0 | 4,634,710 (32.9%) |
| 1 - 4 | 3,160,800 (22.4%) |
| 5 - 11 | 3,087,757 (21.9%) |
| 12 - 17 | 1,927,002 (13.7%) |
| 18 - 24 | 310,517 (2.2%) |
| 25+ | 946,845 (6.7%) |
| Mean | 7.5 |
| Median [Q1, Q3] | 3.7 [0.4, 11.1] |
Age at Last Visit
| Age (in years) | Overall |
|---|---|
| 0 | 904,553 (6.4%) |
| 1 - 4 | 2,673,824 (19.0%) |
| 5 - 11 | 3,925,761 (27.8%) |
| 12 - 17 | 3,731,891 (26.5%) |
| 18 - 24 | 1,631,648 (11.6%) |
| 25+ | 1,199,954 (8.5%) |
| Mean | 12.5 |
| Median [Q1, Q3] | 11.1 [4.9, 17.1] |
Medical Complexity
| PMCA | Overall |
|---|---|
| Complex Chronic (malignant, progressive, or 2+ body systems) | 713,926 (5.1%) |
| Noncomplex Chronic | 1,218,744 (8.6%) |
| No Chronic Disorders | 12,134,961 (86.1%) |
Demographics
| Sex | Overall |
|---|---|
| Female | 7,113,152 (50.5%) |
| Male | 6,968,084 (49.4%) |
| Race | Overall |
|---|---|
| American Indian or Alaska Native | 37,925 (0.3%) |
| Asian/Native Hawaiian/Other Pacific Islander | 723,127 (5.1%) |
| Black/African American | 2,151,044 (15.3%) |
| White | 7,490,583 (53.1%) |
| Multiple race | 448,841 (3.2%) |
| Other** | 2,004,880 (14.2%) |
| Unknown | 1,240,643 (8.8%) |
| Ethnicity | Overall |
|---|---|
| Hispanic | 2,755,415 (19.5%) |
| Not Hispanic | 9,397,235 (66.7%) |
| Other/Unknown | 1,944,393 (13.8%) |
Prevalence of Common Health Conditions
| Health Conditions | N | Prevalence per 10,000 patients in database |
|---|---|---|
| Appendicitis | 94589 | 68 |
| Juvenile Idiopathic Arthritis | 25892 | 19 |
| Asthma | 1241390 | 895 |
| Bronchopulmonary dysplasia | 31627 | 23 |
| Brain tumor | 32547 | 23 |
| Chronic Granulomatous Disease | 479 | 0 |
| Cystic Fibrosis | 13137 | 9 |
| Duchenne muscular dystrophy | 11510 | 8 |
| Inflammatory bowel disease (Ulcerative Colitis + Crohn’s Disease) | 41362 | 30 |
| Immune Thrombocytopenic Purpura | 2845 | 2 |
| Leukemia + Lymphoma | 43181 | 31 |
| Lyme Disease | 23758 | 17 |
| Sickle Cell Anemia | 20415 | 15 |
| Seizure Disorder | 411099 | 296 |
| Type 1 Diabetes | 77869 | 56 |
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Except where otherwised noted, this item's license is described as a BSD 2-Clause License.